Seeking a cure!

[lad61]

Hi I'm Laura, dx with lupus and sjogrens in 2007. Trying to stay informed...

[Michiganpbc]

How are you doing? What symptoms did you have before getting a diagnosis? How did they diagnose you?

[lad61 in reply to Michiganpbc]

Sorry it took me so long to reply. Before being diagnosed at times my joints would hurt all of them, then i started having severe dry mouth to the point that i can't eat without having something to drink. At times my mouth is so dry that i can hardly talk. Was started on hydroxychloroquine and that has helped tremendously! So as of now i'm pretty stable. I praise God that i haven't been on any steroids as of yet, but at times i wonder if they would help with the sjogrens. I have to watch what i eat. Most everything spicy burns my mouth really bad. If something is really salty that burns as well. I'm really researching to find help with sjogrens. Pilocarpine did not help it only made me sweat profusely. There was another med, but my insurance wouldn't pay for it!!

[Chanpreet_Walia LUPUS UK]

Hi Lad61,

Welcome to the LUPUS UK HealthUnlocked Community!

We offer a free information pack that contains factsheets, guides, a list of helplines and a list of LUPUS UK contacts that you and your daughter can chat with over the telephone. To download or request this pack click here: lupusuk.org.uk/request-info...

We published a number of factsheets and guides focusing on certain topics such as ‘LUPUS: the Skin and Hair’ and ‘LUPUS: The Joints and Muscles’. Our published factsheets and guides contains helpful tips and information which I hope you find useful, you can access our published literature here: lupusuk.org.uk/publications/

Please keep us updated, wishing you all the best.

[lad61]

Thanks sooo much i need all the help i can get. I have been reading some really cool info on this blog!