St Thomas update: I’m only going home!!!!! After 1... - LUPUS UK

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St Thomas update

Wolf1 profile image
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I’m only going home!!!!! After 10 days. I’ve got shrinking lung syndrome, hemi diaphragm, fibrosis of lungs, Pleuritis, abnormal bone marrow in keeping with lupus. Going to start Mycophenolate ( MMF) to start. Seeing Prof in 2 months can’t wait to go home xxx thank you for all your interest and support xx

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Wolf1
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webar4780 profile image
webar4780

Fantastic News, your going home!! Hopefully, you are already home and relaxing in peaceful surroundings.

As awful as your hospital stay has been, and better news was wished for you, now you have real diagnosis, and a solid treatment plan.

How sad, that the struggle to get heard, and seen, so that we may get on with our lives, takes such effort. No matter, you did it! Well done!!

Please tell me, you will not go back to work, ever.

Wishing you all the very best. Xx

PMRpro profile image
PMRpro

Excellent! With an answer no less - bells and whistles on it! Now look after yourself...

whisperit profile image
whisperit

You've really been through the mill this year, Wolfie. Well done for toughing out the latest trial. My guess is that the first thing you will notice is how very quiet it is at home. Take it easy and sleep well x

Georgie-girl profile image
Georgie-girl

So pleased you're home after the nightmare you've had. Take extra special care of yourself and keep warm. X

Lupiknits profile image
Lupiknits

Home at last. What a terrible time you've had, poor thing. Now take it easy, snuggle up in your own comfy bed and catch up on all the sleep and decent food you've been deprived of xxx

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