Random grasp for air

[ceceliac10]

Hi everyone I was just wondering any body out There experiencing random grasping for breath? A little bit of back ground my X-ray and CT scan shows lung cavity and consolidation around my lungs. Test for TB was negative. Recently had lung biopsy which I am waiting for the results. Sometimes this Radom grasps for air is almost like a hiccup. It’s just wired. Thanks in advance

[netherthong]

Hi Celceliac10 this sudden gasp for a breath has just started happening to me, didn't link it with Lupus until I read your post !! I am not going to be of any help to you I'm afraid as I'm just as mystified by it as you are, hope your lung biopsy will be happy news.

Regards

[ceceliac10 in reply to netherthong]

Hi Netherthong

Thanks for taking the time to read and reply to my post. Yes it’s quite wired but I read 50% of Lupus sufferous do have lung involvement. I will keep you posted when I speak to the specialist.

Take care for now

[Hidden]

I am the same. Like randomly have to catch my breath. I could be sitting, standing or almost sleeping when it happens. My rheumy sent me for heart and lung check ups but nothing has ever come back and I unfortunately have no answers either. Good luck with your biopsy x

[ceceliac10 in reply to Hidden]

Hi there that is exactly what is happening to me. One of the frustrating things about Lupus is we experience symptom or things but when Test are ran they come out negative. 😔. Take care

[Hidden in reply to ceceliac10]

Yes I have these too. I have Sjögren’s rather than Lupus - lungs always clear when checked so I’m thinking it’s related ether to Sjögren’s dryness or related autonomic dysfunction - like central sleep apnea. I’m collecting a device to check for obstructive sleep apnea but think it will be fine. Mine happens throughout the day and night. Maybe I’ve had it for a long time but am just more aware of all this stuff now - or maybe it’s getting worse - can’t be sure.

[ceceliac10]

Hiya mine happens day and night. Guess I will just have to wait and see what the specialist says. Could be it’s the Lupus up to it’s old tricks.

[Chanpreet_Walia LUPUS UK in reply to ceceliac10]

Hi Ceceliac10,

How did you get on at your appointment?

We published a factsheet on 'LUPUS: The Heart and Lungs' which you may find useful: lupusuk.org.uk/wp-content/u...

[ceceliac10 in reply to Chanpreet_Walia]

Hiya wow quite informative thanks for the link.

[Littlebowpeep]

Hi Ceceliac, I used to deal with exactly the same symptom. I dont have it any more, and the only differance is that I had mythyroid removed and one of my parathyroids removed. I had this done because I had hyperparathyroidism. My other symptoms were extream fatigue. Its an easy thing to get your levels of thyroid and parathyroid checked, if your new tests dont give you clear answers, mabey this will help, blessings, littlebowpeep

[ceceliac10]

Hi little bow peep I see my check doctor today so maybe i May have some answers fingers crossed

[Tiras]

Yes, I have COPD along with SLE, about 25% of my lung tissue is gone and what you described, happens to me daily!