Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,915 members • 28,239 posts

All posts for October 2017

still burns

I feel that even with my factor 50 prescription sun creem my face still feels as if its burning with the sun in summer even if its only a couple of minutes...

I feel that even with my factor 50 prescription sun creem my face still feels as...

corrie14

•7 years ago

7 Replies

Support Groups West Yorkshire

Hi everyone, I live in Bradford and wondered if anyone new of a lupus support group or if not fancied helping to get one up and running? I know I would benefit...

Hi everyone, I live in Bradford and wondered if anyone new of a lupus support gr...

tinkerbell12

•7 years ago

3 Replies

Lupus nephritis

HI there My son aged 18 was diagnosed 2 weeks ago with SLE and lupus nephritis and pneumonitis. He was classed at a 4 for his kidneys and has been started on...

HI there My son aged 18 was diagnosed 2 weeks ago with SLE and lupus nephritis a...

Deegraham

•7 years ago

2 Replies

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luppy fibro

Anyone with lupus and or fibro living in scotland fife willing to chat on phone . AS I AM NOTCOMPUTER SAVY AND DONT KNOW HOW TO PRIVATE message brain fog...

Anyone with lupus and or fibro living in scotland fife willing to chat on phone ...

corrie14

•7 years ago

1 Reply

Lumpy shoulder ?

I need a bit of advice about one of my sons who is 21. He has lumps in his muscle in his shoulder with pain for 5-6 months he has had an MRI which has not show...

I need a bit of advice about one of my sons who is 21. He has lumps in his muscl...

weathervane

•7 years ago

11 Replies

Lupus

Hey, I am a 20 year old Female and new to this I just wondered if anyone has experienced the same as me in some way. Last September I became ill with symptoms...

Hey, I am a 20 year old Female and new to this I just wondered if anyone has ex...

JaneI_1

•7 years ago

14 Replies

Strange day

Woke up feeling ok. Met a friend for lunch and felt tired all of a sudden when I was driving. I feel heavy eyed/heavy headed. A jelly like/tremor like feeling...

Woke up feeling ok. Met a friend for lunch and felt tired all of a sudden when I...

Mandypandy1969

•7 years ago

2 Replies

feels good to talk

Hi came across this site last night it feels comforting to know there is people out there who understand how i feel. I got cutaneous lupus, fibromyalgia...

Hi came across this site last night it feels comforting to know there is people ...

tini44

•7 years ago

6 Replies

Ibersartan and the kidneys

Hi , I have stage 3 lupus nephritis , had this for over 15 years always protein in my urine at checkups . My blood pressure is always high when I go for...

Hi , I have stage 3 lupus nephritis , had this for over 15 years always protein ...

Buffy14

•7 years ago

2 Replies

Hate my body

Since being ill I put on so much weight I don't even know how. I Am not even on steroids yet i am scared how big will i get once i am going to use the...

Since being ill I put on so much weight I don't even know how. I Am not even on ...

Tulipano

•7 years ago

25 Replies

Mecrapine

My wife has just been prescribed mecrapine to add to hydroxy. Does anyone know how to buy this at reasonable cost - I have been quoted over £500 for 12...

My wife has just been prescribed mecrapine to add to hydroxy. Does anyone know h...

jimbo1605

•7 years ago

10 Replies

Results

What does ana scr, ifa w/refl títere/pattern/lupus pnl 2 mean?

Mealfredo78

•7 years ago

4 Replies

Hydroxychloriquine Zentiva update and info. Please all read.

Update for all regarding the suply of our Zentiva Hydroxy, after seeing the posts where some have got their meds again and some still having trouble with the...

Update for all regarding the suply of our Zentiva Hydroxy, after seeing the pos...

willowwag

•7 years ago

23 Replies

GP DRS.

Hello, im new to the site and have recently just been diagnosed with SLE. Im just wondering if anyone else has trouble with their drs not understanding. By drs...

Hello, im new to the site and have recently just been diagnosed with SLE. Im jus...

Annap26

•7 years ago

20 Replies

Investigations continue

Can anyone make sense of these results especially DNA as say abnormal but then ds DNA is in range??strange sensation all over body past few month...

Can anyone make sense of these results especially DNA as say abnormal but then d...

Domi1041

•7 years ago

3 Replies

Light boxes - can photosensitive lupus people use them?

Hi All Last winter a colleague started using a light box, they're used for treating Seasonal affective disorder. They made a very noticeable difference to his...

Hi All Last winter a colleague started using a light box, they're used for trea...

JenniferW

•7 years ago

10 Replies

Fund Raising Plans 2017/2018

Just to say my plans moving forward. October this year I raised £300 for GoTheExtraMile. I have now got a general form which I will put spare change into up...

Just to say my plans moving forward. October this year I raised £300 for GoTheEx...

Johnnyb10

•7 years ago

2 Replies

Can't stop crying today!..

Hi all, Am so tearful today and just feel like I'm not coping. I'm 38y with 2 small kids and am struggling! I do have a partner tho . I just can't stop crying...

Hi all, Am so tearful today and just feel like I'm not coping. I'm 38y with 2 sm...

Sara_A

•7 years ago

18 Replies

tinnitus

my tinnitus has got so loud lately. driving me mad!! got worse since I started taking steroids and hydroxy. anyone else noticed this problem if they had...

my tinnitus has got so loud lately. driving me mad!! got worse since I started t...

Mandypandy1969

•7 years ago

4 Replies

Sun cream obsess

Become a little obsess with sun cream / lotions / spray / sticks you name it I am trying it I never use to burn or have any reaction to the sun, hence would...

Become a little obsess with sun cream / lotions / spray / sticks you name it I a...

Leave-me-alone

•7 years ago

14 Replies

Is this related to lupus? Picture attached...

Kinda gross, but does this look like a lupus mouth sore? I have had it for about a week. I gargle with antiseptic mouthwash, but it's not going away. Anyone...

Kinda gross, but does this look like a lupus mouth sore? I have had it for about...

shareasmile

•7 years ago

15 Replies

It’s only hair but...

Hey, last year I noticed my hair started to change but as I work outside thought it could be the reason, in the last few months it’s got worse and I’m starting...

Hey, last year I noticed my hair started to change but as I work outside thought...

LLH76

•7 years ago

11 Replies

Blue badge

I used to have a blue badge about 6 years ago but then was quite a bit better so when it ran out I didn't renew it as didn't feel I needed it anymore. Now I...

I used to have a blue badge about 6 years ago but then was quite a bit better so...

Sara_A

•7 years ago

7 Replies

Syrinx on the spinal cord

Hi thanks for the add,my story have had a Syrinx on my spinal cord c2c3 since 2014 after a MRI, but was never told and was told nothing wrong with my back...

Hi thanks for the add,my story have had a Syrinx on my spinal cord c2c3 since 20...

Safster

•7 years ago

16 Replies

Doxycycline

I have been in a flare for the past 4 weeks, doctor has given me antibiotics then two weeks of steroids. I had a spinal tap on Wednesday as I suffer with...

I have been in a flare for the past 4 weeks, doctor has given me antibiotics the...

MarcelaS

•7 years ago

5 Replies

Kidneys

My ct scan shows normal kidney but I still have blood in my urine so I am wondering if I could still have problem with my kidneys regardless what the ct scan...

My ct scan shows normal kidney but I still have blood in my urine so I am wonder...

Tulipano

•7 years ago

6 Replies

Fundraising.

Hi all. My mum and me held a coffee morning on Saturday and we raised £310 for lupus UK. So proud of myself. I wanted to chanel my frustration of having this...

Hi all. My mum and me held a coffee morning on Saturday and we raised £310 for l...

Twad

•7 years ago

11 Replies

Skin peeling from inside mouth after eating certain fruit, and smell hypersensitivity through the roof. Can anyone identify?

Hi all. I just wondered if anyone can identify with this problem? I find now that many fruits, especially grapes, (I could make a long list of fruits but will...

Hi all. I just wondered if anyone can identify with this problem? I find now th...

Minnskimoo

•7 years ago

7 Replies

Will a driving job affect my pip points

Iv been offered a driving job 16 hours, but I receive PIP, will this affect my points?

Iv been offered a driving job 16 hours, but I receive PIP, will this affect my p...

Dillyford

•7 years ago

1 Reply

I will be out of the office (12/10/17 - 30/10/17)

Hi everyone, I just wanted to pop a quick message on here to let you know that I will be out of the office from the middle of this week and I won't be back...

Hi everyone, I just wanted to pop a quick message on here to let you know that I...

Paul_Howard

Partner•7 years ago

76 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2017

still burns

Support Groups West Yorkshire

Lupus nephritis

luppy fibro

Lumpy shoulder ?

Lupus

Strange day

feels good to talk

Ibersartan and the kidneys

Hate my body

Mecrapine

Results

Hydroxychloriquine Zentiva update and info. Please all read.

GP DRS.

Investigations continue

Light boxes - can photosensitive lupus people use them?

Fund Raising Plans 2017/2018

Can't stop crying today!..

tinnitus

Sun cream obsess

Is this related to lupus? Picture attached...

It’s only hair but...

Blue badge

Syrinx on the spinal cord

Doxycycline

Kidneys

Fundraising.

Skin peeling from inside mouth after eating certain fruit, and smell hypersensitivity through the roof. Can anyone identify?

Will a driving job affect my pip points

I will be out of the office (12/10/17 - 30/10/17)

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