Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,925 members • 28,254 posts

All posts for October 2017

Cholesterol

My husband had a letter from the hospital to let him know he has raised cholesterol. Everything was going so well and he got off steroids in the summer but now...

My husband had a letter from the hospital to let him know he has raised choleste...

Loopywife

•7 years ago

2 Replies

No medical exam requested on pip assessment

Had homevisit today for transfer from DLA. She didn't seem To have read the copious evidence I sent and had to Lend her my copy of form and prescription! Only...

Had homevisit today for transfer from DLA. She didn't seem To have read the copi...

Blueeyes57

•7 years ago

12 Replies

Feeling frustrated by the NHS 😠

I’ve got lupus and had chronic sciatica since April. In July I was diagnosed with a torn Achilles’ tendon. 6 doctors later, I’m no further forward with any...

I’ve got lupus and had chronic sciatica since April. In July I was diagnosed wi...

Kelihunt41

•7 years ago

3 Replies

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Itching like mad!

Any suggestions please I’m itching so much and don’t know what would help! Can’t get to the doctors at the moment so wondered if anyone has any good...

Any suggestions please I’m itching so much and don’t know what would help! Can’t...

MissFG

•7 years ago

14 Replies

RITUXIMAB

Hi there eveyone I am starting on Rituximab next week with my first infusion and I am a little nervous to say the least! Just wanting to know if anyone who...

Hi there eveyone I am starting on Rituximab next week with my first infusion an...

Bakbre

•7 years ago

17 Replies

Neupagin

Anyone has to have this shot to boost their white blood cells?

jennyall12

•7 years ago

4 Replies

Always seem to just be waiting for bedtime!!

Is it just me or does anyone else get up and just seem to be waiting for it to be bedtime again! It just seems like u are wasting ur life by just being...

Is it just me or does anyone else get up and just seem to be waiting for it to b...

Sara_A

•7 years ago

11 Replies

Temple pain

Hi all not been on for a while hope everyone is keeping as well as they can. Just a quick question, does anyone have pain in their temple area on one side it...

Hi all not been on for a while hope everyone is keeping as well as they can. Ju...

Gillyg

•7 years ago

23 Replies

Trouble breathing

Hi 😊 Does anyone else have trouble breathing when they're laying down? Not in a breathless/panting kind of way, it's more like the air I'm taking in isn't...

Hi 😊 Does anyone else have trouble breathing when they're laying down? Not in...

Sarah_H

•7 years ago

5 Replies

Nausea after flu jab

I had my flu jab on Saturday and have been nauseous since Sunday. I've not had this side effect before but wondered if this is something anyone else has...

I had my flu jab on Saturday and have been nauseous since Sunday. I've not had t...

Nickym2301

•7 years ago

2 Replies

Tinnitus

I am getting tinnitus mainly at night and the consultant is talking about swapping me from Hydroxychloroquine to Mepachrine. I am nervous about this as...

I am getting tinnitus mainly at night and the consultant is talking about swappi...

Twinkle_12

•7 years ago

30 Replies

Facial numbness

Hi does anyone ever get numbness on the right hand side of their face. Mine had been coming on for a couple of weeks and now seems to have gone numb. It’s not...

Hi does anyone ever get numbness on the right hand side of their face. Mine had ...

MandaH1

•7 years ago

1 Reply

Tried everything - nurse helpline can give some advice if needed

Hello - i thought people may be interested in this. I've been trying lots of things to improve my situation to no avail (i have bladder incontience). I...

Hello - i thought people may be interested in this. I've been trying lots of thi...

Sassmum73

•7 years ago

1 Reply

Old member but first post...............

Good morning all, I was just wondering if anyone here is taking Hydroxychloriquine? If so, do you find it makes your "finger blisters" worse? Since starting it...

Good morning all, I was just wondering if anyone here is taking Hydroxychloriqui...

Sheenie2008

•7 years ago

5 Replies

Hydroxychloroquine and hypoglycaemia

Most people here are thoroughly bored of my tale of chronic exhaustion and episodes of sweating, flushing and nausea. I've had referrals to cardiology and...

Most people here are thoroughly bored of my tale of chronic exhaustion and episo...

whisperit

•7 years ago

28 Replies

Painful and swelling arms...

I haven't been diagnosed with Lupus yet, Im waiting to see rheumatology next month but for the past 3 months I get reoccurring arm swelling and pain to the...

I haven't been diagnosed with Lupus yet, Im waiting to see rheumatology next mon...

suzannejayne

•7 years ago

3 Replies

Lanzarote

Arrived safely Thursday night felt the heat as soon as I stepped off the plane . The airport was an experience , we were being rushed through the checking in...

Arrived safely Thursday night felt the heat as soon as I stepped off the plane ....

LouLamb

•7 years ago

20 Replies

Feal free to giggle

I think this is my first post since leaving hospital but if I'm wrong it was the pain Meds 🤠🤠I was taken in with kidney stones had scans told yes u have...

I think this is my first post since leaving hospital but if I'm wrong it was the...

Ianrussell69

•7 years ago

14 Replies

Really Embarrasing Bowel Problem (funny, but not when it happens to you)!

Please don't read this if squeamish, because there is quite a bit of detail. You have permission to laugh, but I'm not joking! Tonight is the second time my...

Please don't read this if squeamish, because there is quite a bit of detail. You...

Lupiknits

•7 years ago

21 Replies

Thick blood!!!!

Hi been diagnosed with thick blood (2.20) Not been told what can be done!!!

lilly60

•7 years ago

3 Replies

Blood tests

Can anyone tell me what the anti dsna ranges are I can't get my head round blood tests im positive ANA and my rheumatologist is sending me conective tissue...

Can anyone tell me what the anti dsna ranges are I can't get my head round blood...

Miacats

•7 years ago

2 Replies

Confused

I'm SLE (positive ANA, ds-DNA, which I know is lupus. What does all this mean negative RF, ENA, ANCA, ACPA, weakly positive IgG anticardioplin antibody?

I'm SLE (positive ANA, ds-DNA, which I know is lupus. What does all this mean ne...

Lancslass1962

•7 years ago

3 Replies

New and awaiting ANA bloods

Hello. I'm hoping someone might be able give me some advice please. I'm waiting on my first referral appointment to a rheumatologist, as my doctor is stumped....

Hello. I'm hoping someone might be able give me some advice please. I'm waiting...

Chan1986

•7 years ago

8 Replies

Anti cardiolipin

Hi all. Does anybody know anything about anti cardiolipin levels. Normal range is up to 10. 8 months ago my level was 199. It has slowly come down to 35 but...

Hi all. Does anybody know anything about anti cardiolipin levels. Normal range i...

Fairweather

•7 years ago

8 Replies

Newly diagnosed with LUPUS

Hi my name is Dibarge i have been recently diagnosed with SLE.I'm now severely fatigued most of the time.I'm not unable to perfome chores around the house.I'm...

Hi my name is Dibarge i have been recently diagnosed with SLE.I'm now severely f...

Dibage

•7 years ago

5 Replies

Numb left foot

Had foot pain since August. Bloods showed levels for inflammation raised. Repeating those bloods next week. This evening I have pubs and needles and burning in...

Had foot pain since August. Bloods showed levels for inflammation raised. Repeat...

Hidden

•7 years ago

1 Reply

Lupus and polymyositis

Just saw my consultant and on top of Lupus i have muscles autoimmune disease called polymyasosis. Does anyone else have it too? The Dr may do a muscle biopsy...

Just saw my consultant and on top of Lupus i have muscles autoimmune disease cal...

Tulipano

•7 years ago

6 Replies

I'm new

hello all ... I was diagnosed with Lupus in 2003. I have just found this site after I reached out for help. I have been suffering in silence and trying to cope...

hello all ... I was diagnosed with Lupus in 2003. I have just found this site af...

LupieLady45

•7 years ago

10 Replies

Dry mouth

Hi everyone. I have suffered with dry mouth, nose and eyes on and off with lupus. It’s particularly bad at the moment. Which products does everyone use for...

Hi everyone. I have suffered with dry mouth, nose and eyes on and off with lupus...

joannebond360

•7 years ago

18 Replies

Struggling

Had DLE since 2008 and coped with this since then, didnt realise that for a while all the other symptoms ive been getting was actually SLE which I have been...

Had DLE since 2008 and coped with this since then, didnt realise that for a whil...

Les2008

•7 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2017

Cholesterol

No medical exam requested on pip assessment

Feeling frustrated by the NHS 😠

Itching like mad!

RITUXIMAB

Neupagin

Always seem to just be waiting for bedtime!!

Temple pain

Trouble breathing

Nausea after flu jab

Tinnitus

Facial numbness

Tried everything - nurse helpline can give some advice if needed

Old member but first post...............

Hydroxychloroquine and hypoglycaemia

Painful and swelling arms...

Lanzarote

Feal free to giggle

Really Embarrasing Bowel Problem (funny, but not when it happens to you)!

Thick blood!!!!

Blood tests

Confused

New and awaiting ANA bloods

Anti cardiolipin

Newly diagnosed with LUPUS

Numb left foot

Lupus and polymyositis

I'm new

Dry mouth

Struggling

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