Doxycycline

[MarcelaS]

I have been in a flare for the past 4 weeks, doctor has given me antibiotics then two weeks of steroids. I had a spinal tap on Wednesday as I suffer with intracranial pressure with severe Papilledema. I woke the next morning with a strange sensation in both ears, it felt like I was under water I telephoned the doctors but no appointments eventually getting an appointment today. He has prescribed these Doxycycline as he says I have one ear blown out and one sucked in . I asked if this could be connected to the tap I had done, as I never suffer with my ears. He didn't really know. Now I have taken two of these tablets as instructed but now keep getting shooting pains in my chest and lung area. Has anyone had experience of these drugs ? 😪

[misty14]

Hi marcelas

So sorry your going thru such a tough time. I can't advise about the spinal tap as never had one but I can say that I had a flare when taking doxycycline!. It's interesting that you have suddenly had new symptoms after taking a couple of them. You could see if you could get them changed !. Good luck and I hope your better soon. X

[Bronagh2015]

I had a course of these recently for an infection and they made me feel really horrible, I did finish them but don't think I'll ever take them again. You really shouldn't have pains like that, when my daughter had a spinal tap it actually gave her an infection and she ended up back in hospital. You should get it checked out just to be on the safe side.

[soootired in reply to Bronagh2015]

Doxycycline are contraindicated for those who have lupus. I was given them recently for suspected pneumonia and then my gp took me off them when I found out by reading the leaflet that comes with them, because i was flaring. She apologised and told me that it hadn't shown up on her system when she prescribed them, She put me on something else imediately.

[Bronagh2015 in reply to soootired]

Interesting, I'll remember that! Thankyou 😊

[webar4780]

Hi Bronagh,

Hope you are feeling better today.

If you have a query regarding the spinal tap, you can phone the health provider that did the procedure. You can't second guess. Did you not get a post procedure hand out?

Phone the department, or consultant Secretary, or PALS.

NHS is run as a business now. You are the customer and need to know the post procedure possible effects.

Take care. X