feels good to talk

Hi came across this site last night it feels comforting to know there is people out there who understand how i feel. I got cutaneous lupus, fibromyalgia osteoarthritis endometriosis and Renaults phenomenon and on plenty of meds. My GP is great when you can get an appointment with him! I am under dermatology but rheumatology doesn't want to know.(diagnosed and a leaflet got told to read up about it). Not feeling good lately.Sometimes it all feels to much.


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6 Replies

  • Hello and welcome! You've found a good place, full of support, friendship, and understanding. Just having the forum often makes me feel better on a bad day.

  • Thank you very much.You brought a smile to my face, some days I just find it really hard. :)

  • Hi Tini and welcome. Like you I am under care of dermo and Rheumy doesn't seem to want to know. So I know how you feel. You'll find some good support here and hopefully get some comfort that you're not alone! 👊

  • Hi Tini

    Welcome to the forum .. I've only been here myself for a couple of months following a flare.. I have found it really informative and it always lifts me on a down day.. hope you find it helps 🌻

  • Thank you for your comments it feels strange to talk on here, only ever speak to my husband about things .Actually feeling a bit relieved talking to people who understand what I am on about.(He is very good, but at times he does finds it hard too and then I end up not telling him everything.) It has actually helped me today felt tearful and hopeless, not anymore :) xxx

  • Hi Tini44,

    Welcome to the LUPUS UK HealthUnlocked Community!

    We offer a free information pack which you can download or request here: lupusuk.org.uk/request-info...

    We offer a number of factsheets that discuss different topics with regards to lupus which you can access here: lupusuk.org.uk/publications/

    Sometimes, certain situations can be overwhelming which is why talking to someone can help relieve worries and anxiety that you may have. If you would like someone to speak to, we can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at chanpreet@lupusuk.org.uk .

    I do encourage you to use this forum regularly - we have lovely community members who are always willing to help!

    Please keep us updated, wishing you all the best.

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