Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for October 2017

Heart failure

Hi just been to a & e as had terrible chest sin yesterday with vomiting. Pain then radiated to my back over night. Basically they did ct scan, a long with...

Hi just been to a & e as had terrible chest sin yesterday with vomiting. Pain th...

Wolf1

•7 years ago

2 Replies

Vaginal bleeding

I hope you don't mind me posting this but I am so worried. I am newly diagnosed and my consultant is doing lots of tests and i am due a kidney biopsy too. I...

I hope you don't mind me posting this but I am so worried. I am newly diagnosed...

Tulipano

•7 years ago

4 Replies

Epstein Bar and Lupus: any Connection?

Hey, there. I was told by one of the many idiots I went to for "healthcare" while working my way to a Lupus diagnosis, that my blood test results showed that I...

Hey, there. I was told by one of the many idiots I went to for "healthcare" whil...

NeseVee

•7 years ago

8 Replies

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Sensitive skin

I get patches of skin which are super sensitive. They vary in size, come and go and move about day to day. At worst I feel stabbing nerve type pains. I don’t...

I get patches of skin which are super sensitive. They vary in size, come and go ...

Marley

•7 years ago

5 Replies

Been a good few weeks !!

So I just wanted to share how much of a good few weeks I've had and will be having . I thought when i got told I had lupus that was the end of life for me . I...

So I just wanted to share how much of a good few weeks I've had and will be havi...

LouLamb

•7 years ago

45 Replies

East Midlands Lupus Information Day

Our thanks to Gill Woodford and the team for organising a very informative afternoon in Nottingham today. Best wishes Kevin

Our thanks to Gill Woodford and the team for organising a very informative after...

Kevin53

•7 years ago

10 Replies

Nice to meet you, everyone.

I am a black Mother of three sons, 18, 15+, and 13+. I am new to the world of Lupus. But unfortunately I am not new to the discomfort of its presence. I am...

I am a black Mother of three sons, 18, 15+, and 13+. I am new to the world of Lu...

DaddyzGrl

•7 years ago

11 Replies

Another strange feeling

Sorry to post again but I need some advice pleas. My left side is feeling very weak, it’s always my worst side but it’s getting worse. Today my arm and leg...

Sorry to post again but I need some advice pleas. My left side is feeling very ...

Tinkerjack1912

•7 years ago

7 Replies

I don't get what tier 1--3 mean

Ok so what does tier 3 Ana dada w/ reflex mean? And what happens if you don't get the medical help you need? And I do want it but I just don't have a ride to...

Ok so what does tier 3 Ana dada w/ reflex mean? And what happens if you don't g...

Lilrosie1

•7 years ago

6 Replies

been MIA

have not been here in couple of months, well update my lupus has been flaring up super bad, i take 2 Gapatentin at night for pain and so i can sleep and my...

have not been here in couple of months, well update my lupus has been flaring up...

Mealfredo78

•7 years ago

1 Reply

Greetings

Hi good evening, greetings from Nigeria.

chimaobi10

•7 years ago

2 Replies

6/12 months break from methatrexate

As I've posted befor been I hospital with kidney stone and infection had scan and was told the infection was from a fistula so off to theatre job done now I...

As I've posted befor been I hospital with kidney stone and infection had scan an...

Ianrussell69

•7 years ago

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Fingernails

Hi. Does anyone else get very sore fingernails? Down the sides where the skin dips around the nail. It happens when I've perhaps washed my hands a lot or not...

Hi. Does anyone else get very sore fingernails? Down the sides where the skin d...

Suecon

•7 years ago

6 Replies

Hematology appointment

Very confused and worried - I had my rhumy call me last tuesday out of the blue asking if i had been to the Lupus hospital in London yet (which i hadn't) as he...

Very confused and worried - I had my rhumy call me last tuesday out of the blue ...

Hidden

•7 years ago

4 Replies

Zentiva/Sanofi Hydroxcy Back in stock for us

Hi all just to let everyone know I have spoken to Zentia/Sanofi and we should now have all our normal Hydroxcycloriquine back in stock they did have a shortage...

Hi all just to let everyone know I have spoken to Zentia/Sanofi and we should no...

willowwag

•7 years ago

13 Replies

First UK Guidelines for Management of Lupus in Adults Published Today

On Friday 6th October 2017, during Lupus Awareness Month, the British Society for Rheumatology (BSR) has published the first UK guideline on the care of adults...

On Friday 6th October 2017, during Lupus Awareness Month, the British Society fo...

Paul_Howard

Partner•7 years ago

15 Replies

stomach

hi. has anyone here had trouble in going to the toilet. I used to go regular as clockwork every day but now this is not happening. could it be something to do...

hi. has anyone here had trouble in going to the toilet. I used to go regular as ...

Mandypandy1969

•7 years ago

11 Replies

Trouble with supply

Hi all, Is anyone else having problems getting hold of hydroxychloroquine the brand made by Zentiva, I have been taking it for 5 years however my local...

Hi all, Is anyone else having problems getting hold of hydroxychloroquine the br...

Makeba

•7 years ago

5 Replies

Ear problems

Hi I feel like I have lost my hearing. I Have earache and I can't hear well. I Am so down. I Am not seeing my lupus consultant until 24th October. What...

Hi I feel like I have lost my hearing. I Have earache and I can't hear well. I ...

Tulipano

•7 years ago

7 Replies

Test results (laymens terms would help)

Hi all just had test results sent to me by specialist 🤤 dont understand them. Been struggling with being very tired not sleeping well and mood swings n very...

Hi all just had test results sent to me by specialist 🤤 dont understand them. ...

Tinathebus

•7 years ago

1 Reply

Need recommendations for specialists

Hi i was with Prof Bruce at Manchester i have since moved to hertfordshire. Manchester gave me choices of specialists in London anyone got any ideas who would...

Hi i was with Prof Bruce at Manchester i have since moved to hertfordshire. Manc...

Tinathebus

•7 years ago

3 Replies

Frustrated!

So today I had my appointment with the Rhuemy and I'm not even sure what he's doing for me. He wants me to tell my dermatologist to take me off of my...

So today I had my appointment with the Rhuemy and I'm not even sure what he's do...

Athens94

•7 years ago

5 Replies

feeling goona die

its a ridiculous post name.. I know..😂😂 but don't know wht to write...I am struggling everyday with my mind and body.I know I m doiing better.my doctor...

its a ridiculous post name.. I know..😂😂 but don't know wht to write...I am str...

ava97

•7 years ago

9 Replies

Family History of Lupus

You may recall my first post, don't give up saying I got diagnosed with lupus in 2011 and last year it affected the heart valve and I had an op, but came back...

You may recall my first post, don't give up saying I got diagnosed with lupus in...

Johnnyb10

•7 years ago

5 Replies

Kidney biopsy

How many of you had a kidney biopsy? My rheumatologist Dr wants to do it as I have blood in my urine and I am newly diagnosed. I Am so scared. How was your...

How many of you had a kidney biopsy? My rheumatologist Dr wants to do it as I ha...

Tulipano

•7 years ago

6 Replies

Hand Swelling

My hands have been swelling every morning for months now. I was referred to a rheumatologist who I saw a couple of months ago and he said he couldn't diagnose...

My hands have been swelling every morning for months now. I was referred to a r...

newbs36

•7 years ago

4 Replies

Not just a cold?! It's Pneumonia!!

Hey, Well.... the past few nights have been horrible. This cough has kept me awake & gave me terrible chest pain. I have crackling bubbling & rattling sounds...

Hey, Well.... the past few nights have been horrible. This cough has kept me a...

LauraMk30

•7 years ago

4 Replies

What were your first signs of lupus before diagnosis!?

Hello everyone...I’m yet to be diagnosed but I’ve test positive for anti nuclear and anti smooth muscle antibodies (both weak positive) ,along side with...

Hello everyone...I’m yet to be diagnosed but I’ve test positive for anti nuclear...

Domi1041

•7 years ago

4 Replies

tapering

Does anyone know how to taper off of low does prednisone?? I have been taking 10mgs daily for 6 weeks...Thank You

Does anyone know how to taper off of low does prednisone?? I have been taking 10...

leslieliesel

•7 years ago

26 Replies

What were your first signs of lupus before diagnosis!?

Hello everyone...I’m yet to be diagnosed but I’ve test positive for anti nuclear and anti smooth muscle antibodies (both weak positive) ,along side with...

Hello everyone...I’m yet to be diagnosed but I’ve test positive for anti nuclear...

Domi1041

•7 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2017

Heart failure

Vaginal bleeding

Epstein Bar and Lupus: any Connection?

Sensitive skin

Been a good few weeks !!

East Midlands Lupus Information Day

Nice to meet you, everyone.

Another strange feeling

I don't get what tier 1--3 mean

been MIA

Greetings

6/12 months break from methatrexate

Fingernails

Hematology appointment

Zentiva/Sanofi Hydroxcy Back in stock for us

First UK Guidelines for Management of Lupus in Adults Published Today

stomach

Trouble with supply

Ear problems

Test results (laymens terms would help)

Need recommendations for specialists

Frustrated!

feeling goona die

Family History of Lupus

Kidney biopsy

Hand Swelling

Not just a cold?! It's Pneumonia!!

What were your first signs of lupus before diagnosis!?

tapering

What were your first signs of lupus before diagnosis!?

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