Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,838 members • 28,179 posts

All posts for March 2016

NHS MDTs for chronic disease patients???!!!

Hello all 🤗 First a bit of intro: If you've been following my posts, you'll know that since this time last year a really great NHS urology surgeon has been...

Hello all 🤗 First a bit of intro: If you've been following my posts, you'll kn...

Barnclown

•8 years ago

50 Replies

March's Topic of the Month - Exercise (We want to hear your tips and experiences)

We will be continuing our ‘Topic of the Month’ in March by discussing, ‘Exercise’ Exercise is an important part of taking care of yourself and your wellbeing....

We will be continuing our ‘Topic of the Month’ in March by discussing, ‘Exercise...

Paul_Howard

Partner•8 years ago

62 Replies

Does your rash come and go?

In the last couple of weeks, a rash has appeared on my face, neck and chest, a number of times. It's usually the evenings and only there for a couple of hours....

In the last couple of weeks, a rash has appeared on my face, neck and chest, a n...

friars126

•8 years ago

3 Replies

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The darker side of lupus #6

Is when after posting, the funny side of lupus for my amazing hydrotherapy session, which I enjoy immensely, I find myself sitting in the lobby at 4am because...

Is when after posting, the funny side of lupus for my amazing hydrotherapy sessi...

amandalilley

•8 years ago

1 Reply

Hip replacement failing after 15 years ?

Had knee replacement on 4th February doing great , walking good . Now my hip on other leg sore an painful . Does anyone know how to tell if hip needs replacing...

Had knee replacement on 4th February doing great , walking good . Now my hip on ...

AbbieJ55

•8 years ago

3 Replies

Is it Lupus or all in my mind?

For the last 6 months I have felt increasingly weak and tired. I already have type 2 diabetes and I am hypothyroid. On researching my symptoms I suspect Lupus,...

For the last 6 months I have felt increasingly weak and tired. I already have ty...

Claireb5

•8 years ago

11 Replies

Update: referral attempt to nearest Lupus Centre

Hi guys Just lost entire update for no reason. If this ends up a double post forgive me. Senior GP on holiday. Got apt for next week. I hope he comes back...

Hi guys Just lost entire update for no reason. If this ends up a double post for...

Footygirl

•8 years ago

2 Replies

The funny side of lupus #11

Is when, today, Monday 7th March 2016, , on a hydrotherapy day with your 70 year old, active mum and daughter, you get changed to head towards the wonderfuly...

Is when, today, Monday 7th March 2016, , on a hydrotherapy day with your 70 year...

amandalilley

•8 years ago

3 Replies

Weight loss journey

I've been told by my rheumatologist and family doctor that I would feel better if I got rid of some weight. I decided to try a weight loss pill. My doctor...

I've been told by my rheumatologist and family doctor that I would feel better i...

randa_lupie

•8 years ago

7 Replies

new to diagnosis

i recently found out I have lupus, mixed connective tissue disease through 2 bipsie at my dematologists andi am i treatment for lyme disease with babesia...

i recently found out I have lupus, mixed connective tissue disease through 2 bi...

lysaj

•8 years ago

1 Reply

Herts or Essex Rheumy?

Hi all, just wondering if anyone could recommend a good rheumatologist in the Hertfordshire, Essex or North London areas? I have connective tissue disease and...

Hi all, just wondering if anyone could recommend a good rheumatologist in the He...

mochamum

•8 years ago

6 Replies

Autoimmune Related Symptoms- Any UK Medical Specialists Out There? (Not GP's - THANKS).

Dear All, No clue where to start or how best to explain. Long story short, I am suffering from a multitude of symptoms. GP's - unfortunately it has been a...

Dear All, No clue where to start or how best to explain. Long story short, I a...

Chiara77

•8 years ago

12 Replies

LUPUS please, please go away I fear to see another day.A "flare up"where is the break?? How much more can I take?

I am sick of complaining sick of hearing myself say"I dont feel good....I want an end .I want to know this will stop.I want be be ME again.II have all this...

I am sick of complaining sick of hearing myself say"I dont feel good....I want a...

Julietsmombless2015

•8 years ago

8 Replies

Suffering in silence due to GP saying it's all in your head!!

Morning everyone has anyone else been told by their gp that the pain is all in your head? I was told this 3 years ago and have suffered in silence since. Until...

Morning everyone has anyone else been told by their gp that the pain is all in y...

steph1977

•8 years ago

9 Replies

Here's one I made earlier( art as therapy)

Hello everyone Here's one of my cards that I love to make , therapy for coping with these illnesses!. Hope you all will add your similar creations to keep...

Hello everyone Here's one of my cards that I love to make , therapy for coping w...

misty14

•8 years ago

33 Replies

Measles and lupus

Hi all,turns out I have measles, just worried about how it could affect me because I have lupus and with it being weekend I can't contact my doctor, has...

Hi all,turns out I have measles, just worried about how it could affect me beca...

X-Jojom-X

•8 years ago

2 Replies

The funny side of lupus #10

Is when, in your pimped wheelchair, one fine summer afternoon, you are enjoying the sun (covered up of course!, god forbid that you overdose on vitimin d!) at...

Is when, in your pimped wheelchair, one fine summer afternoon, you are enjoying ...

amandalilley

•8 years ago

8 Replies

WOW just WOW

Hi, went to the rheumatologist yesterday , he was looking at some of my tests results on the computer and he said 'the tests you had in February showed you...

Hi, went to the rheumatologist yesterday , he was looking at some of my tests re...

Hidden

•8 years ago

18 Replies

ESA Appeal Refused,Lupus

Well,ive been on here before,thought id give an update.Just found out my ESA Appeals been refused,they ignored the letter of my specialist saying i cant work.I...

Well,ive been on here before,thought id give an update.Just found out my ESA App...

RAZ76

•8 years ago

16 Replies

Lupus Research Institute researcher identifies a possible cause of Lupus

Read an interesting article As always interested in peoples thoughts and comments...

Read an interesting article As always interested in peoples thoughts and commen...

Liberton

•8 years ago

5 Replies

Raised cholesterol

Any one have a raised cholesterol possibly related to Prednisolone? Do you follow a low fat diet or are you on statins? Ta x

Any one have a raised cholesterol possibly related to Prednisolone? Do you follo...

DaleDiva

•8 years ago

9 Replies

Side effect methotrexate

my methotrexate was upped from 15 to 20 mg, injection.I have noticed a day or so after the injections I am having anxiety and feel panicky.

my methotrexate was upped from 15 to 20 mg, injection.I have noticed a day or s...

amandajane76

•8 years ago

3 Replies

What to do?

Hi again, i joined a few months ago after testing positive to an ANA test. My result was 1:640 homogenous. My anti dna test was negative but recently my...

Hi again, i joined a few months ago after testing positive to an ANA test. My r...

Kate16

•8 years ago

13 Replies

Gp referral to Specialist in next count (he is nearest) how do i it successfully?

Hi. Me again. If you have been following my posts you will know that you have all dragged me back from the darkest place I have ever been. I have been given...

Hi. Me again. If you have been following my posts you will know that you have al...

Footygirl

•8 years ago

10 Replies

How many of you have EDS?

Just out of interest I would like to know how many people are double jointed? Last year the BBSA the SJOGRENS charity did POTS and hopefull they will do...

Just out of interest I would like to know how many people are double jointed? La...

New47

•8 years ago

3 Replies

PIP

Hi everyone, I've just received the dreaded PIP letter and they want me to call them before the end of March if I wish to claim. I get DLA at the minute. It's...

Hi everyone, I've just received the dreaded PIP letter and they want me to call ...

jacqueline121

•8 years ago

14 Replies

Lupus

I have skin lupus under investigation for sle I have breathing problems for months and have to clear my throat constantly anyone else have this just wondering...

I have skin lupus under investigation for sle I have breathing problems for mont...

lisamarie39

•8 years ago

2 Replies

New member looking for support

Morning everyone my name is steph I have had sle since 2003 was diagnosed straight after having my first son. It was awful I couldn't pick him up out of his...

Morning everyone my name is steph I have had sle since 2003 was diagnosed straig...

steph1977

•8 years ago

8 Replies

In pain

I have Lupus SLE & Raynards, am on anti biotics for a throat infection, whole body aches, shivers last night with body temperture of 102. I also got a ping...

I have Lupus SLE & Raynards, am on anti biotics for a throat infection, whole bo...

coffeycaine

•8 years ago

1 Reply

Lupus specialists in North West England. Know any?

Hello you fellow rag tag bunch! Thanks for your advice, wisdom and love. I am raised up by you all. I want a referral to a "proper" Lupus specialist. HELP. Do...

Hello you fellow rag tag bunch! Thanks for your advice, wisdom and love. I am r...

Footygirl

•8 years ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2016

NHS MDTs for chronic disease patients???!!!

March's Topic of the Month - Exercise (We want to hear your tips and experiences)

Does your rash come and go?

The darker side of lupus #6

Hip replacement failing after 15 years ?

Is it Lupus or all in my mind?

Update: referral attempt to nearest Lupus Centre

The funny side of lupus #11

Weight loss journey

new to diagnosis

Herts or Essex Rheumy?

Autoimmune Related Symptoms- Any UK Medical Specialists Out There? (Not GP's - THANKS).

LUPUS please, please go away I fear to see another day.A "flare up"where is the break?? How much more can I take?

Suffering in silence due to GP saying it's all in your head!!

Here's one I made earlier( art as therapy)

Measles and lupus

The funny side of lupus #10

WOW just WOW

ESA Appeal Refused,Lupus

Lupus Research Institute researcher identifies a possible cause of Lupus

Raised cholesterol

Side effect methotrexate

What to do?

Gp referral to Specialist in next count (he is nearest) how do i it successfully?

How many of you have EDS?

PIP

Lupus

New member looking for support

In pain

Lupus specialists in North West England. Know any?

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