Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for March 2016

Carpal tunnel

Hi guys, I was wondering if anyone has carpal tunnel? My hand are driving me made, especially at night. I keep waking up with dead hands. The right is worse...

Hi guys, I was wondering if anyone has carpal tunnel? My hand are driving me mad...

Alison-Brown

•9 years ago

10 Replies

POTS: how do you manage yours?

Yesterday the research rheumatologist advised me to see cardiology for more indepth checks on my version of POTS. I've been avoiding cardiology...managing my...

Yesterday the research rheumatologist advised me to see cardiology for more inde...

Barnclown

•9 years ago

20 Replies

Feel like I have fire ants under my skin!

Does anyone else have this problem? I was diagnosed with SLE about 3 years ago. I suffered terribly with joint and muscle pain but this is now generally under...

Does anyone else have this problem? I was diagnosed with SLE about 3 years ago. ...

ZoeJackdaw

•9 years ago

29 Replies

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Bloods

Ive been to see my doc he said lupus wasn't active then two days later I got an email saying it was very active dose anyone else get good bloods reports when...

Ive been to see my doc he said lupus wasn't active then two days later I got an ...

diane46

•9 years ago

3 Replies

Tonsillitis, and a question about rashes.

Hey guys. Ugh. So, if you saw my last post, you'll know I've not been having such a great time of late. It's been months now and I've not received a clear...

Hey guys. Ugh. So, if you saw my last post, you'll know I've not been having suc...

stacieann1989

•9 years ago

6 Replies

Lupus and Sleep apnea

Please can anyone help I have been given a CPAP machine and I have tried 4 masks each keep lifting off my face, so no seal and the air pumps hard into my face,...

Please can anyone help I have been given a CPAP machine and I have tried 4 masks...

Louisa65

•9 years ago

10 Replies

Senior GP WILL refer to Lupus specialist!

Hi all Well. I read my prepared request. The snr GP straight away went on the computer and I asked for the form with the password. He said he was trying to do...

Hi all Well. I read my prepared request. The snr GP straight away went on the c...

Footygirl

•9 years ago

7 Replies

Rash on the hand

it started off with little fine bumps sort of like hives. They started to itch really bad. Now they have dried up and starting to Peel. Is this a lupus rash or...

it started off with little fine bumps sort of like hives. They started to itch r...

randa_lupie

•9 years ago

11 Replies

I think my flare up is going into remission it's been a long rough 6 months so far..

I can use my hands again and sketch I haven't been able to since my daughter was born this is my first sketch of her.I can type fast open jars and walk without...

I can use my hands again and sketch I haven't been able to since my daughter was...

Julietsmombless2015

•9 years ago

5 Replies

Can't shift sore throat/swollen glands/chesty cough

I've had a sore throat, swollen glands, chesty cough, earache and headaches for a week now and my symptoms aren't really improving. I've tried resting, the...

I've had a sore throat, swollen glands, chesty cough, earache and headaches for ...

Dancingc21

•9 years ago

3 Replies

Embarrassed and bruised.....

Feeling really sorry for myself on this beautiful sunny Monday morning. Yesterday I was having a good day and my lovely best friend invited me over for Sunday...

Feeling really sorry for myself on this beautiful sunny Monday morning. Yesterd...

georgie63

•9 years ago

5 Replies

The funny side of lupus #12

Is when during the 'darkness' of the pain and frustration you send a generalised text message to your friends and family explaining that you are out of action...

Is when during the 'darkness' of the pain and frustration you send a generalised...

amandalilley

•9 years ago

4 Replies

The darker side of lupus #7

Is when after 3 days of such severe pain in every part of one's body, you pass out and throw up at the same time..............you realise that finding 'The...

Is when after 3 days of such severe pain in every part of one's body, you pass o...

amandalilley

•9 years ago

7 Replies

PIP GURUS NEEDED

Hi guys Further to my challenging my gp practice, and asking for a referral to a proper Lupus specialtist, a PIP letter has landed on the mat. If I get this...

Hi guys Further to my challenging my gp practice, and asking for a referral to a...

Footygirl

•9 years ago

13 Replies

Face dropping

Hi I was wondering does anybody have the feeling of one side of their face dropping? I don't have any pain or rash just a feeling of this quite often. I'm...

Hi I was wondering does anybody have the feeling of one side of their face dropp...

DixieD123

•9 years ago

8 Replies

Trigger finger

Not sure if arthritis is now a new symptom for me. I thought i was doing ok, but now my right middle finger locks and pops everyday for the past month i would...

Not sure if arthritis is now a new symptom for me. I thought i was doing ok, but...

Natura

•9 years ago

27 Replies

What to do

I do not know what to do for a job. I am only 16 and have to stay at school until 18 unless have a job. I would ideally like to do an apprenticeship. I've...

I do not know what to do for a job. I am only 16 and have to stay at school unti...

LouLamb

•9 years ago

3 Replies

Looking for advice/Help?

saw my rumotologist on Wednesday just gone, looking like I do have lupus but wants to do scans an bloods to make it 100% certain.. I'm not fussed about having...

saw my rumotologist on Wednesday just gone, looking like I do have lupus but wan...

Hidden

•9 years ago

4 Replies

Wore down from shopping for my daughter Juliet's first easter ever!I'm confined to bed for the day but it was so worth it.

I got to pick everything I wanted for her,toys are a lion and tiger, great for teething,glitter 5 rainbow glitter sticks and a rainbow puppy.Candy: blue bunny...

I got to pick everything I wanted for her,toys are a lion and tiger, great for t...

Julietsmombless2015

•9 years ago

2 Replies

Lupus flair

It's now 5 weeks since I broke my wrist, but had I known then that breaking a bone triggers a flair up, then I would have been prepared, but instead it was...

It's now 5 weeks since I broke my wrist, but had I known then that breaking a bo...

Cal66

•9 years ago

1 Reply

Weight gain with severe flare up?

Is this uncommon I haven't heard anyone say this happens to them.Okay I est like a bird here and there never big meals small snacks all day .I'm usually 120...

Is this uncommon I haven't heard anyone say this happens to them.Okay I est like...

Julietsmombless2015

•9 years ago

10 Replies

The Dead Slow and Nearly Stop approach to pred reduction:

I have been asked by someone to post this reduction plan on this forum. It is long to try to make it understandable - those of you who use word processing...

I have been asked by someone to post this reduction plan on this forum. It is l...

PMRpro

•9 years ago

7 Replies

Chronic illness and social isolation

Hi everyone, I have just been reading some of the posts here and realised that we have been blessed to have such a wonderful site where we can share our...

Hi everyone, I have just been reading some of the posts here and realised that ...

Pipido36

•9 years ago

12 Replies

Distraction from lupus tomorrow it's going down lol

I know that sounds like I'm about to party,but I'm about to shop for my daughter's easter basket and go grocery shopping. I haven't in a month now.I couldn't,...

I know that sounds like I'm about to party,but I'm about to shop for my daughter...

Julietsmombless2015

•9 years ago

3 Replies

Hydroxychloroquine and skin darkening

Hi All, Would like to know if anyone else has suffered darkening of the skin owing to this medication - I am a 'woman of colour' and have noticed a...

Hi All, Would like to know if anyone else has suffered darkening of the skin ow...

Tilcara

•9 years ago

21 Replies

You've got to laugh.....

I've had breathing difficulties since my teens. Some of you may know from a previous post. It only happens in the spring & summer, my chest gets tight and for...

I've had breathing difficulties since my teens. Some of you may know from a prev...

friars126

•9 years ago

7 Replies

Letter from GP regarding Hylo-Forte

Well what a ridiculous letter I received from my GP practice yesterday. One of my regular prescriptions - Hylo-Forte 2% eye drops Preservative Free (...

Well what a ridiculous letter I received from my GP practice yesterday. One of ...

bestbuddy

•9 years ago

13 Replies

Your rights as a Patient

I have been asked to make this very helpful link from Citizens Advice more readily available to everybody;...

I have been asked to make this very helpful link from Citizens Advice more readi...

Paul_Howard

Partner•9 years ago

25 Replies

new pip form

informed pip about having lupus now received a new form to fill in this is such a daunting thing does any one know any help i can get for this thanks

informed pip about having lupus now received a new form to fill in this is such ...

carollesley

•9 years ago

6 Replies

Neutrophil Count <0.7 whilst Taking Mycophenolate Mofitil

Hi all, I have been diagnosed with Cerebral Lupus in November 2014 and have been taking Mycophenolate Mofitil (Cellcept) since then to prevent further brain...

Hi all, I have been diagnosed with Cerebral Lupus in November 2014 and have bee...

JenStarkey

•9 years ago

26 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2016

Carpal tunnel

POTS: how do you manage yours?

Feel like I have fire ants under my skin!

Bloods

Tonsillitis, and a question about rashes.

Lupus and Sleep apnea

Senior GP WILL refer to Lupus specialist!

Rash on the hand

I think my flare up is going into remission it's been a long rough 6 months so far..

Can't shift sore throat/swollen glands/chesty cough

Embarrassed and bruised.....

The funny side of lupus #12

The darker side of lupus #7

PIP GURUS NEEDED

Face dropping

Trigger finger

What to do

Looking for advice/Help?

Wore down from shopping for my daughter Juliet's first easter ever!I'm confined to bed for the day but it was so worth it.

Lupus flair

Weight gain with severe flare up?

The Dead Slow and Nearly Stop approach to pred reduction:

Chronic illness and social isolation

Distraction from lupus tomorrow it's going down lol

Hydroxychloroquine and skin darkening

You've got to laugh.....

Letter from GP regarding Hylo-Forte

Your rights as a Patient

new pip form

Neutrophil Count <0.7 whilst Taking Mycophenolate Mofitil

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