Hello all 🤗
First a bit of intro:
If you've been following my posts, you'll know that since this time last year a really great NHS urology surgeon has been investigating & treating my lifelong "complex persistent pattern urinary tract + pyelonephritis infections"....this selfie was for my aged mother who lives in the states - taken on the day I went to stay overnight in hospital for rigid colposcopy & biopsy....
anyway, if you've been following my stuff, you'll also know that 1 month ago I saw the great NHS Women's Health Services Physio my urology surgeon had referred me to for pelvic floor fitness review + prolapse & motility investigations ...and that this physio identified multiple ehlers danlos hypermobility prolapses down there, complicated by my lifelong sjogrens aggravated IBS + immunoglobulinaemia gastro-complications. So, I guess my chronic early onset complex persistence pattern abdo/pelvic stuff is being well & truly focused on by our dear contrary complex persistent pattern 😉 NHS! (Please forgive the "Dr speak", but 5 years on from the NHS recovering my infant onset lupus diagnosis, I've realised that when patients 'talk the talk', medics may be better predisposed to 'walk the walk'...so I'm trying to get the hang of this lingo)
Well I've just got home after my 5th urology clinic appt. my surgeon was just as great as ever, and this time she introduced me to the concept of NHS MDTs: Multidisciplinary Teams for patients with chronic diseases...AM I DREAMING😴🦄: NO, seems these really do exist, and NOT just, as I'd imagined, for cancer or diabetes patients. (OR maybe I'm just behind: does everyone here know about these MDTs?).
Anyway, apparently at my local NHS hospital, my urology surgeon meets monthly with colleagues in gynaecology dept + colorectal dept + physiotherapy etc to discuss patients like me: how best to help us (which investigations/tests/imaging,
which procedures & by whom, which treatment, which monitoring etc)
When I got home I googled NHS MDT and loads of links came up - mostly for cancer patients, BUT here IS a link explaining a bit about their general application:
So, are these NHS MDTs an example of the joined-up approach we've been saying is THE way to go in cases of immune dysfunction...well, I'm not letting myself hope for too much...but my gosh am I interested to find out how my chronic complex persistence pattern abdo/pelvic probs do or don't benefit from a MDT approach 🤔. Am not exactly looking forward to the MDT all peering together into my undercarriage...but if that's what this takes...I'll go along 😝😘
Has anyone else heard of or experienced NHS MDTs?