botox: Has anyone had botox at the urology clinic... - LUPUS UK

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robinson9 profile image
7 Replies

Has anyone had botox at the urology clinic for incontinence and was it

successful?  I have been offered it, but told to think about it, as I might

need to insert a cathether if the botox does not work.

  I now feel a little concern about this method and wonder if anyone has

had this procedure.

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robinson9
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7 Replies
Patricia2015 profile image
Patricia2015

I have other bladder problems (urine retention) but i wonder if botox would help on your situation.

Botox paralyses certain muscles. If you already have incontinence I think it would have an adverse effect.

I wish you much strength to handle this health challenge!

robinson9 profile image
robinson9 in reply to Patricia2015

Hi Patricia.

thanks for your words of advice.  I tend to agree with you actually.

the doctor has suggested maybe another medication with what i'm

already taking.  so I might take that option.

I have a the feeling you understand my problem.

regards maria.

Patricia2015 profile image
Patricia2015 in reply to robinson9

You are welcome.

You could discuss Anticholinergics with your GP. More on this type of medicines: emedicine.medscape.com/arti...

Happy Easter!

anniesensi profile image
anniesensi

As I understand it, botox is not permanent, so if it doesn't work for you is there anything to loose?

Intermittant catheterisation is easy, just beware of UTI's - however the idea is that by not retaining urine you shouldn't really have them. 

robinson9 profile image
robinson9 in reply to anniesensi

thank you anniesensi.  your reply was very helpful to me.  you've been very kind.

anniesensi profile image
anniesensi in reply to robinson9

I would not be afraid to try Botox, this is why it was developed after all.  I have MS and APS and a few other auto immune things, bladders are problematic and can be embarrassing. I know that, but if something can help it's worth a try? 

Good luck with your decision x

DocMartin profile image
DocMartin

Has vibration been considered if there is retention enough to consider intermittent catheterisation. There is a device to vibrate the bladder area to obtain better emptying (in some people)....known as  the "Queens Square Bladder Stimulator" developed for the famous Queens Square Institute of Neurologyin London  by Dr Malem of Malem Medical of Nottingham and information is obtainable from malem@malem.co.uk  . Using vibration might not influence incontinence but it might. It is an alternative to intermittent catheterisation in those persons in whom vibration is effective (not everyone). Trying vibration to get better bladder emptying  has no known problems. Any benefit  can be evaluated in an individual by the influence on symptoms and by  the use of ultrasound to measure volume of bladder contents before and after passing urine and with and without  use of vibration when initiating and during passing urine. This method is often no suggested because the use of intermittent self-cathetrisation is a more established method and is certain to empty the bladder but may not have any effect on incontinence but it intrusive and (for the NHS or the patient in many countries) more expensive.

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