Look what the Easter Bunny brought me!
Last week during a discussion here about lupus, sweating & the autonomic system, George posted a great excerpt from The Lupus Encyclopedia on the subject...so I went online to find out more about this volume. What I learned impressed me enough to order the printed version, although that meant emptying my piggy bank (the kindle version from Amazon is more affordable, but I like printed reference books).
So, yesterday afternoon I read the foreword, preface + a few chapters including chapter 44: The Lupus Secrets Checklist, in which the author (a lupus expert rheumatologist named Donald Thomas) summarises his top tips....he writes that "most physicians & nurses don't have time to go over these with patients, even though they are important"...and my feeling is that this chapter alone makes this book worth owning. And everything I've read in it so far makes me sorry I haven't had it by my side for years...but, then, I couldn't have: cause it was only published in 2014 by the Johns Hopkins Press....so it's nearly bang up to date
This book is written from an American perspective, but most of what I've read fits with my experience as a lupus patient here. The style is humane, deeply thoughful, and totally accessible...not dry and academic at all...although it's full of solid professionalism & expertise....good sound information displayed in practical formats.
I'd love to meet Dr Thomas & shake his hand....I get the impression he is one of those rare medics: a really good guy & a True Detective
So, have been mentally thanking our George @ Lupus UK for turning me onto this book...it is available from the Lupus UK website, but that closed over the Bank Holiday...while Amazon would deliver my copy yesterday..it's now joining my 2 fav references (Wallace's books on Lupus & Sjogrens) on the shelf
Wishing everyone a happy holiday