Hello All. This is my first time writing in, although I have been reading the posts for some time now. It has helped knowing that there are others who are feeling and going through what I am. I was diagnosed with MCTD in August. Right now I am in between rheumy's. I am on hyroxychloroquine, gabapentin for the pain, and a water pill to help with the edema. I got in touch with my GP to let her know the pain and mobility are getting worse and she just put me on a low dose of prednisone for the next 30 days to help with inflammation. My GP is a very nice lady, but she herself will admit she is out of her league with what is going on with me. My appointment with new rheumatologist is not until June, unless someone cancels. I need to know if what I am experiencing is what any of you have experienced. My leg pain is excruciating. I have a high threshold for pain, but this is really taking a toll. When this first started, I would get severe muscle cramps in my thighs that would stop me in my tracks and when rising from a seated position my leg would lock and I wouldn't be able to move until it "unlocked". What felt like muscle pains, heavy legs, sometimes legs feeling like rubber bands, and occasionally my legs would give out on me. But now the pain has progressed rapidly and most days I need a cane to walk. And some days, I just can't walk at all. My legs give out on me quite a bit more. Sometimes the pain feels like intense muscle pain, as if I just ran a marathon. Sometimes the pain feels like someone is wringing my leg bone. Other times when I try to put any weight down on my leg, the pain is so bad it feels as though my leg bones are about to snap and rip through my leg. Is this kind of pain normal for my disease? Any feedback would be appreciated.
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