Good morning all Writing from the US. Forgive me in advance as I am extremely long winded. I've been reading different posts trying, hoping, to relate. And I do on so many levels. I haven't been diagnosed and am not even sure what I'd be diagnosed with. An Auto Immune issue of course, but which one??? My symptoms started about 6 yrs ago and I've been through a few tests from 2 GPs, an Immunologist, been to a Rheumatologist, Pain Management (I refused the meds they were offering since they were physically addictive and due to finances I can't maintain a script)....sigh...I have connected the dots to some sort of Auto Immune and can't understand why they won't pursue more testing. I was POS for ANA but the Immunologist brushed that off to meds. When asked if the meds I was on could do that, he said it was unlikely but could be...????? What??? And that we would probably never know what was causing my symptoms. I have gotten the same response from both GP's, the Rheumatologist, & Pain Mgmt. Needless to say I now feel like a hypochondriac and last week my ANA came back Negative. I instantly felt as if I'd lost my mind since that POS result yrs ago is the only saving grace I've had to explain my myriad of symptoms.....Is anyone else out there losing their minds? I am a Mom (kids are 21, 20, 18, and 2), I work full time and am respected at work. I don't call in sick (w/ the exception of the stomach flu last yr!), I am a responsible, and so I once thought, and a SANE individual. I avoid the doctors as much as possible until it is clearly UNAVOIDABLE! My symptoms come and go but a few are constant. Constant - skin seems sore or like it's going to bruise on legs and arms, shoulders. Joints in hips & knees, sometimes ankles, elbows hurt to sleep on and sometimes just to sit in general. I seem to feel better when moving. Headaches....so tired of the headaches & fatigue. I don't sleep well at all so that could be where the fatigue is from. Poor circulation in my hands and feet when lying down also. And I have developed light spider/pink veins the sides of my nose and front of my cheeks...not a raised rash, their light pink lines or veins???. Symptoms that come and go, extreme itching of the inner ear (I sleep w/ q-tips), hands & feet - at night mostly at night in bed, but also itching of under arms, the nape of neck and groin (high heat areas?), demographic skin, vertigo - mild, heart burn/indigestion/sour stomach/stomach lesions (tested negative to celiac). And my newest as of three weeks ago, numbness &/or pins and needles on the ENTIRE right side of my body. CT Scan w/out contrast showed nothing. Neck and back X-rays are normal. My GP isn't concerned????? I have an appt. w/ a Neuro in 6 weeks. It's getting better on my right leg, foot & stomach & back, but it's worse on my entire scalp. It'll probably be gone by the time my Neuro appt gets here. I think I'm losing my mind....ANY ideas would be helpful. I am becoming quite emotional since this newest issue!
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