I was wandering if anyone has this problem and how they deal with it on daily basis. Since the onset of my lupus many years ago I have experienced constant weakness, tightness and pain around my left lung and ribcage. The tightness in my ribcage causes breathlessness and restricts my movements. I cannot walk at normal pace or hurry otherwise I become breathless. carrying anything heavy other than a light handbag causes distress in my lung and breathlessness. my lung is also very sensitive to chemical fumes like tobacco smoke, exhaust fumes and other chemical vapours. these cause a burning sensation and distress in my lung and breathlessness, these chemicals also cause me to become quite ill because of hyper sensitive issues.
I have had lung function tests in the past, which have shown restriction in lung function, however lung xrays and ct scans have been inconclusive and don't show any lung damage. my rheumy has always put it down to pleurisy /inflammation. I used to be given steroids, which helped in the past but after a while not even this had any effect and meds for asthma does not help, just make me ill.
I am now told that my lupus is quite and in remission (I call it supressed remission on plaqunil daily). however my lung and rib cage symptoms still persists and impacts on me daily. when I talk about it I feel like I am being dismissed by rheumy because as far is he is concerned I should not be experiencing this because I am in my fifties and my lupus is in remission. He doesn't seem to understand how much this impacts on my life.
Is anyone else experiencing this problem, because I feel like I am talking but no one is listening.