My bloods say my lupus is under control yet in the last 12 months my infection rate is dreadful, my body is racked in pain but on an emergency visit to my consultant (I had his stand in) was told everything was fine and to cut out my Azarthioprine only on 50mg due to my weight. My pain level if possible has got worse. Going on holiday on Tuesday was he right to say give up this drug. He said at that dose it wasn't doing anything anyway. I also have SS and Fibromyalgia . Don't know what to do. I am not new to these illnesses almost 30 years but still feel help is hard to get. It's hard to get Dr to listen to what I say and not what the bloods say.
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