Hi All! I am Canadian...I live near Ottawa, Ontario, but have found this site to be so very helpful. I was officially diagnosed this year after being a bit of a square peg for almost my entire life.
I have always had weird versions of normal events. I had the mumps for a month when I was little...but I got better...so nothing was investigated. I had very strange reactions to anesthesia....but again got better. I had 4 pregnancies, with 2 miscarriages and happily, 2 very healthy boys...but I had so much difficulty getting pregnant (polycystic ovaries. ...which took awhile to get diagnosed....because, again....I was not a typical patient). And while I enjoyed being pregnant every minute....my time as a pregnant lady was not routine and well, my deliveries were a bit of a disaster. After the birth of my first son....and actually during my pregnancy...I had tingling down my left leg and would feel like hot water was being poured on my foot. Was tested (for the first time) for MS. Had my gallbladder out and my liver shut down. Specialists thought it was autoimmune hepatitis....but again...I got better. So investigations stopped.
My ability to bounce back from the weirdness stopped sometime in 2009.... and after much testing, etc....I was diagnosed with lupus this spring after having a pretty bad flare where the blood work matched up....and unfortunately my kidneys started getting affected.
I can tolerate the exhaustion and the pain....what I can't deal with is the fog. I was always known for my memory. I have lost my ability to string words together and I royally screwed up a registration for my sons...that without a couple of angels on my side...would have ended in disaster for my oldest...a competitive goaltender...son.
My husband is a good guy....but he is impatient. He can't understand how I can forget to get something out for dinner...how I could misplace my debit card so easily...etc.
I have read some info on lupus fog. ..but it is written by someone who has never experienced it.
Any tips? Thoughts? Experiences?