Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,325 posts

All posts for July 2015

Advice on getting the right blood tests....

Hi all - I've been treated with plaquenil since January for suspected sjogren's syndrome/lupus but I'm antibody negative on all blood tests done so far (and as...

Hi all - I've been treated with plaquenil since January for suspected sjogren's ...

Jules_Essex

•9 years ago

6 Replies

Carol

I am so fed up of being in constant pain in my upper right abdomen. Tests have been done in hospital X-ray blood tests and ultra sound. I have no...

I am so fed up of being in constant pain in my upper right abdomen. Tests have b...

Mead7carol

•9 years ago

8 Replies

idiopathic urticaria with SLE

In March I started getting severe allergic reactions to something unknown. Severe itching and a rash all over were the first symptoms. As the months go by the...

In March I started getting severe allergic reactions to something unknown. Sever...

Hidden

•9 years ago

8 Replies

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Mouth aches like I've been clenching my teeth?

I have lupus/sjogrens/raynauds but have never suffered terribly from mouth ulcers. In the past few weeks I have had a very sore mouth. It's quite hard to...

I have lupus/sjogrens/raynauds but have never suffered terribly from mouth ulcer...

ShannonB

•9 years ago

7 Replies

osteopenia diagnosis

I wrote a post a few weeks ago about going to the Renal Bone Clinic. My appointment was today. I have been told that i have Osteopenia at the spine and hip...

I wrote a post a few weeks ago about going to the Renal Bone Clinic. My appointm...

sandwiches

•9 years ago

22 Replies

Lupus, not sure?

Hi I am new here so please bare with me if I am a bit long winded. It is just I really don't know what to do. I have had numerous Lupus type symptoms which...

Hi I am new here so please bare with me if I am a bit long winded. It is just I ...

midge66

•9 years ago

26 Replies

Standing

I ve started to have issues standing for more than a few minutes.my feet go a funny blue ish/red colour and boy do my low limbs hurt.is this common ? I have a...

I ve started to have issues standing for more than a few minutes.my feet go a fu...

amandajane76

•9 years ago

8 Replies

R A and steroid injections into joints?

Hello all Would those of us with RA recommend steroid injections into joints? What is the proceedure like? How long does the effect last? Would you swear by...

Hello all Would those of us with RA recommend steroid injections into joints? Wh...

Footygirl

•9 years ago

10 Replies

Sunbathing and ANA testing

Hi all. Just wondering if being in the sun or just laying out on the beach effects the ANA level etc... Basically will it make the ANA show up when I go for my...

Hi all. Just wondering if being in the sun or just laying out on the beach effec...

winterbaby07

•9 years ago

18 Replies

Pip assesment today

I had my pip assesment today and i'm not sure how it went. I'm still waiting to be confirmed with lupus. I've had positive ana and dsDNA for over 10 years with...

I had my pip assesment today and i'm not sure how it went. I'm still waiting to ...

Leecylou

•9 years ago

3 Replies

lupus and the menapause

Hi can any one help I was diagnosed with Lupus 4 years ago but had it prior to this and didn't no about it. I have been going through the menopause for 3...

Hi can any one help I was diagnosed with Lupus 4 years ago but had it prior to t...

Hidden

•9 years ago

14 Replies

Hydroxychloroquine Prescription Information

We have received reports that a number of people are having difficulty getting hold of Plaquenil and have been informed from their pharmacist that it has been...

We have received reports that a number of people are having difficulty getting h...

Paul_Howard

Partner•9 years ago

17 Replies

No longer sweating even when over heating......

The past few years I have noticed that I have become really intolerant to the heat. Anything over 20 degrees and I get really hot, extremely weak and fatigued...

The past few years I have noticed that I have become really intolerant to the he...

tiredmum

•9 years ago

12 Replies

All well

Hi just let u all know that's operation went well but still In a lot of pain n can't sleep but early days yet x

Hi just let u all know that's operation went well but still In a lot of pain n c...

Diane26964

•9 years ago

1 Reply

Common cold

I woke up this with a scratchy throat and drainage going down when I swallow. I have yet to figure out how to fight this on my own. How do you all do this?

I woke up this with a scratchy throat and drainage going down when I swallow. I ...

adrienneioannou

•9 years ago

11 Replies

Frequent Lupus Flares

Hello Everyone, My daughter is experienceing frequent Lupus Flares. Fever, pain in lower back, headaches and sometimes pain in her neck as well. She was...

Hello Everyone, My daughter is experienceing frequent Lupus Flares. Fever, p...

Stripes1967

•9 years ago

5 Replies

Luppie living alone

Hey fellow Lupies I’ve been gone for a minute but I have some good news … I am getting my own place. I’ve had the most stressful months trying to find a...

Hey fellow Lupies I’ve been gone for a minute but I have some good news … I am...

wotshernameagain

•9 years ago

3 Replies

Would hydroxychloroquine (plaquenil) stop headaches?

I've been treated with plaquenil for 6 months due to suspected Sjogren's syndrome/Lupus - I'm antibody negative for everything though so this is purely based...

I've been treated with plaquenil for 6 months due to suspected Sjogren's syndrom...

Jules_Essex

•9 years ago

1 Reply

Methotrexate - advice please

I have just started on methotrexate after trying azathioprine last year, which made me violently sick. Anyway started it at weekend and was ok (vomiting wise)...

I have just started on methotrexate after trying azathioprine last year, which m...

tjperfick

•9 years ago

12 Replies

lupus pain

hi all. I took no well last June and was told in September i gtested positive for lupus and put on so many meds and told it will bring it under control. It has...

hi all. I took no well last June and was told in September i gtested positive fo...

andreabm

•9 years ago

13 Replies

Had my PIP assessment today, not sure what to think!

Lady came to me home today and did my assessment she was here about 1 1/2 hours. I was told to fill my form in how I was effected on my worse day, but she said...

Lady came to me home today and did my assessment she was here about 1 1/2 hours....

Gymbabe

•9 years ago

2 Replies

Plaquenil / hydroxychloroquine shortage update and a question

Hi all - There's been talk on several of the HU boards regarding the shortage of Plaquenil and hydroxychloroquine. Since I've only been able to tolerate the...

Hi all - There's been talk on several of the HU boards regarding the shortage o...

milkwoman

•9 years ago

25 Replies

New Goof GP, and his ideas on lupus

Hi! Been waiting on a new GP for me...Well he arrived, but they can have him back!!!! He doesnt listen, he calls down other gp, says mild lupus does not...

Hi! Been waiting on a new GP for me...Well he arrived, but they can have him bac...

dgleds

•9 years ago

24 Replies

Eye problems

Hi does anyone have problems with getting dizzy and seeing as if your looking into a kalidescope ? It comes and goes lasting about 20 minutes sometimes won't...

Hi does anyone have problems with getting dizzy and seeing as if your looking in...

Jean11

•9 years ago

17 Replies

Lupus and APS

Hi, I suffer from both Lupus and APS. I have been suffering with the condition since I gave birth to a healthy boy, but was diagnosed a year and a half. I...

Hi, I suffer from both Lupus and APS. I have been suffering with the condition ...

JavariaAhmad

•9 years ago

5 Replies

Rheumatology results

Well all my results came back negative rheumy was thinking connective tissue due to all my symptoms... relieved but also very confused so I guess I will just...

Well all my results came back negative rheumy was thinking connective tissue due...

kazhodluckymilo17

•9 years ago

16 Replies

Sore neck and right shoulder.

Hi everyone. I have had SLE for 10 years, only recently got worse joint pain in hands,feet knees and butterfly rash worse on and off. But now I have neck and...

Hi everyone. I have had SLE for 10 years, only recently got worse joint pain in ...

Nickymck

•9 years ago

16 Replies

online support

I've recently found this online website/ social network for people with Lupus (-- Lupus UK had it as a link on facebook), The site is good for online support/...

I've recently found this online website/ social network for people with Lupus (-...

fabwheelie

•9 years ago

2 Replies

Got my appt in Leeds, yay I think

My local hospital can not keep consultants for love or money, I am supposed to be seen every 6 months but it's more like annually and my last appt I was in and...

My local hospital can not keep consultants for love or money, I am supposed to b...

Gymbabe

•9 years ago

5 Replies

Methotrexate

I have been on methotrexate for 3 years started get awful side effects and loss of effectiveness saw the Rheumy last week and asked me to be brave come off it...

I have been on methotrexate for 3 years started get awful side effects and loss ...

witch2

•9 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2015

Advice on getting the right blood tests....

Carol

idiopathic urticaria with SLE

Mouth aches like I've been clenching my teeth?

osteopenia diagnosis

Lupus, not sure?

Standing

R A and steroid injections into joints?

Sunbathing and ANA testing

Pip assesment today

lupus and the menapause

Hydroxychloroquine Prescription Information

No longer sweating even when over heating......

All well

Common cold

Frequent Lupus Flares

Luppie living alone

Would hydroxychloroquine (plaquenil) stop headaches?

Methotrexate - advice please

lupus pain

Had my PIP assessment today, not sure what to think!

Plaquenil / hydroxychloroquine shortage update and a question

New Goof GP, and his ideas on lupus

Eye problems

Lupus and APS

Rheumatology results

Sore neck and right shoulder.

online support

Got my appt in Leeds, yay I think

Methotrexate

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