I had my pip assesment today and i'm not sure how it went. I'm still waiting to be confirmed with lupus. I've had positive ana and dsDNA for over 10 years with various joint problems fibromyalgia nerve damage in the neck fatigue and many other problems for years. Just after Christmas I had myopericarditis when the cardiologist asked if I had heard of lupus as this could be the cause. After 4 months of fast tract appointments and tests with the cardiology department my GP referred me to Guys to the lupus clinic (wonderful place) where they I'm being seen by Mr Sangles team. I've had an appointment at the chest clinic but was unable to do the lung function test and they stopped it. I'm back there in two weeks along with an appointment with their cardiologist. The person from Altos seemed very well informed on lupus, fibromyalgia, myopericarditus and the other health issues I have. She asked about work and said she was pleased I'd been signed off again told her I was working part time and reduced hours with restricted workload. She asked if I went for a walk how far could I walk before I was breathless exhausted and in pain. I told her I only walk when I have too and she said probably no more than a minute before I stopped and how many times could I safely repeat this without causing distress. She then asked about who cooks said my partner because I'm exhausted after I've worked and if I'm not there I will have toast or reheat a ready meal. She asked about our house said it was a bungalow which was just as well now. She then asked about my hobbies which use to be gardening decorating reading going out etc I now struggle to read for more than ten minutes at a time. She said she wouldn't keep me much longer as she could see I was exhausted. I then had to tell her the three words she mention earlier and was then asked to move my neck which I only have part movement in she said she had recorded there was limited movement to the right then I had to move my arms which I could my left and struggled with the right arm from where I had had a shoulder op after a fall. When she asked me to stand up and touch the floor my mum who was with me said she would rather I didn't incase I fell she said perhaps I shouldn't I said I can lean forward sitting down but didn't feel it was relevant to stand and do so. After the meeting had finished she walked us to the door where she stood to chat. I had to lean against the wall as I was breathless by the time I got there (this was less than 15 metres away) she then said she hoped they found a way to help with my health at guys and suggested I asked my Dr to recommend blue badges. Now whether that means I'm not going to get any help from them or whether it means she could see how difficult it was I'm not sure.
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