I just wondered if anyone else had a Lupus rash on their neck? I didn't realise this was Lupus as it came on from being in the sun, or so I thought, then I was diagnosed with Lupus. When I have a relapse the rash goes very red and hurts.
I only get a facial rash when I am very exhausted.
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Iona467
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Hi, I have a rash not on my neck but pretty much everywhere else. Like you though, I have noticed my skin is a good barometer of how I'm feeling. If I'm feeling run down, come down with a cold, or joint pains go up a notch, then my skin flares up too. It hasn't been good for three years. The dermy thinks I may have psoriasis, so I've just started stelara injections. Can't post pics here, but I've just started a Facebook page to chart my progress. If you're registered, you can find me as "Ste Lara". I doubt I'll be getting any calls from any modelling agencies to pose in this summer's beachwear collection.
It has surprised my how the GP and Rheumatologist are not int in my neck rash. Finally seeing a dermatologist on Thursday so may get some help as it is getting quite painful when I have flare ups. Will look for you on FB.
I also get terrible rashes, have to wear 50+ sun factor, even in the winter. Also skin reacts to lights ommiting UV. Using steroid cream at mo, not helping though.
I have suffered terribly from a rash on my face, neck and chest. St Thomas run a combined lupus/dermatology clinic and have given me some great creams and medications to calm things down. The rash only ever used to be a problem on my face and for years nowhere else.
I've just started to get it recently and on my hands and fingers too. Mine doesn't itch or hurt though but spreads down my chest and egts much redder when I'm stressed.
I get it as take rashes all over don't need to expose skin as i can get exposure on hands and face even with factor 50+it then brings rashes all over i have at present rash all over torso arms hands face and neck even down my legs now.
The rash on my neck looks like a big hand print its over adams apple making it hard to swallow at times. I am photosensitive was tested at Dundee, only thing is been through as many treatments and nothing helping dermatologist stuck for what to do next before this terrible virus appeared shutting down dermatology he was consulting with another colleague what to do next. Its a total nightmare now, I suppose this lockdown is easier on me as used to not being able to go out. Hopefully you don't go same way as its total nightmare!
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