Lupus rash on neck: I just wondered if anyone else... - LUPUS UK

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Lupus rash on neck

Iona467 profile image
14 Replies

I just wondered if anyone else had a Lupus rash on their neck? I didn't realise this was Lupus as it came on from being in the sun, or so I thought, then I was diagnosed with Lupus. When I have a relapse the rash goes very red and hurts.

I only get a facial rash when I am very exhausted.

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Iona467 profile image
Iona467
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14 Replies

Rash in the neck is very common. I get it. My grandmother used to get it so did my mother.

Iona467 profile image
Iona467 in reply to

Thanks for that, my GP does not seem to realise that this is common.

Diagnosed2012 profile image
Diagnosed2012

Hi, I have a rash not on my neck but pretty much everywhere else. Like you though, I have noticed my skin is a good barometer of how I'm feeling. If I'm feeling run down, come down with a cold, or joint pains go up a notch, then my skin flares up too. It hasn't been good for three years. The dermy thinks I may have psoriasis, so I've just started stelara injections. Can't post pics here, but I've just started a Facebook page to chart my progress. If you're registered, you can find me as "Ste Lara". I doubt I'll be getting any calls from any modelling agencies to pose in this summer's beachwear collection.

Iona467 profile image
Iona467 in reply to Diagnosed2012

It has surprised my how the GP and Rheumatologist are not int in my neck rash. Finally seeing a dermatologist on Thursday so may get some help as it is getting quite painful when I have flare ups. Will look for you on FB.

smudge1980 profile image
smudge1980

I also get terrible rashes, have to wear 50+ sun factor, even in the winter. Also skin reacts to lights ommiting UV. Using steroid cream at mo, not helping though.

Iona467 profile image
Iona467 in reply to smudge1980

Nothing is working for me also in the way of creams.

estpem profile image
estpem

I have suffered terribly from a rash on my face, neck and chest. St Thomas run a combined lupus/dermatology clinic and have given me some great creams and medications to calm things down. The rash only ever used to be a problem on my face and for years nowhere else.

Iona467 profile image
Iona467 in reply to estpem

Thats int, as I think mine is spreading down my chest. Does your GP recommend you to this clinic?

estpem profile image
estpem

Yes, live in Coventry but got my GP to refer me.

IrishLupie profile image
IrishLupie

I've just started to get it recently and on my hands and fingers too. Mine doesn't itch or hurt though but spreads down my chest and egts much redder when I'm stressed.

Butterflies-23 profile image
Butterflies-23

my consultant always asks if i have a rash/rashes any where on my body.

Iona467 profile image
Iona467

Just seen a dermatologist who said it was not Lupus?!

Cynwic profile image
Cynwic

Try extra virgin coconut oil. This will help with the rash. Hopefully this will help you.

Frosty1960 profile image
Frosty1960

I get it as take rashes all over don't need to expose skin as i can get exposure on hands and face even with factor 50+it then brings rashes all over i have at present rash all over torso arms hands face and neck even down my legs now.

The rash on my neck looks like a big hand print its over adams apple making it hard to swallow at times. I am photosensitive was tested at Dundee, only thing is been through as many treatments and nothing helping dermatologist stuck for what to do next before this terrible virus appeared shutting down dermatology he was consulting with another colleague what to do next. Its a total nightmare now, I suppose this lockdown is easier on me as used to not being able to go out. Hopefully you don't go same way as its total nightmare!

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