I have been taking a natto k enzyme (helps with sticky blood) since rheumy said my bloodwork even though I had a positive ANA, doesn't mean I have lupus and said because I can bike ride far, I do not have lupus. My question is, for anyone that has clotty blood from SLE could it be that when I have several days of middle back pain, and difficulty breathing that I may be clotting? Two of my brothers have sticky blood and on warfarin. I know my brother gets bloodwork often, and sometimes it doesn't show sticky blood. How can a dr say u r ok, when this fluctuates with lupus patients? I don't understand how they can say this. Also, a problem I have is my ins is so bad, it would probably cost me $1000 to test my blood to see if I am sticky. I cannot afford to constantly be tested. Then I read, this natto k enzyme is helpful with maintaining already healthy levels of blood clotting factors within a healthy range. Sle is not a already healthy level. OR, is it just the inflamation in my lungs that is causing my breathlessness? If I sit in front of steamer all day with eucalyptus, I can breathe.
Any ideas would be welcome! Thanks.