Hi everyone I was diagnosed with lupus 3 years ago, but for the last year I've been suffering with really painful knees and thighs, lately this has been really getting me down today I'm very tearful as once again I'm back on the couch resting them.
I know this sounds weird but I'm always looking for another explanation to my pain like it's hurting because I walked too far or the knees ache because I went up and down the stairs too many times. im very afraid of this desease and of what it can do to your body I detest taking pills daily I get very low in mood when pain is bad and I feel that there is no one to turn to.
My rheumy has put me on prednisone now but have been on them for 6 weeks daily 5mg which is a low dose but he won't increase it as I don't cope well with it.i also take hydroxy 200mg which don't seem to be working but he wants me to keep taking it.
My bloods were up but on last appointment were improved. So I asked my rheumy if my bloods have improved then why am I still struggling with the pain, and he couldn't give me an answer so that's when I start doubting my diagnosis and start worrying no one is going to help me . However in the meantime I'm still here in pain and still sitting on the couch crying and my next appointment is in March (not good). To say I'm frustrated is an understatement.
I'm due to go shopping with my teenage daughter on Saturday for her presents and I sooooo don't want to let her down because it's going to be very hard for me to walk around and it's days like this that my lupus controls me not the other way round.
Feeling very blue today