I was diagnosed with Lupus 7 years ago. Apart from a few mild flares (pains in hands) I had nothing of real significance until 3 yrs ago. I suffered from chronic dizziness, feeling like I couldn't hold a conversation, brain fog, forgetfulness, chronic tiredness.. The list goes on. I ended up in hospital on IV steroids for 3 days which did nothing to immediately alleviate my symptoms. However 2-3 wks after leaving hospital I began to improve. I haven't had anything similar until recently when I started having the above plus more symptoms which have me very depressed and anxious to the point that I can't even sleep. I attended my rheumatologist who mentioned NPSLE which has scared the life out of me.. I'm at my wits end, the past week I took a course of Deltracortil - 5mg tablets x 8 a day. I thought I was improving but have had terrible facial numbness (mainly in my chin) coming and going the past few days.. I've had visual disturbance (floaters and flashing) which is settling, had my eyes checked to be sure. I attended an ENT person last wk who feels almost certain it's not my middle ear but wants an MRI to be 100% sure. The numbness is freaking me out as I googled it and scared myself so much. I can't sleep and I'm trying to be normal for my kids day to day needs and activities. Can't stop crying and basically can't function. Has anybody else had a diagnosis/possible diagnosis of NPSLE?