ANCA negative lupus

[Howsaboutit]

I have had an abnormal lupus anticoag Had repeat last week.

All other results neg ( ANA, ANCA, DsDNA etc etc)

Anyone any info on ANCA negative lupus.

[Paul_Howard Partner LUPUS UK]

Hi,

Are you saying that you tested positive for Antiphospholipid Syndrome (lupus anticoagulant) but the other antibody tests were negative?

Do you currently have a diagnosis?

[Howsaboutit in reply to Paul_Howard]

Hello, i have been told slight abnormality of lupus anticoags, had repeat last week and get results Next week. No diagnosis as yet. Iv had multiple PE's both lungs persistent blood and protein in urine and slightly raised IgA.

Feel dreadful all the time and resigned from work which is a very sensitive subject as i loved my job.

[Paul_Howard Partner LUPUS UK in reply to Howsaboutit]

Hopefully when you get the results back from the repeat test you will get an answer. In the mean time, would you like me to send you one of our free information packs about lupus? It has a booklet about how lupus is diagnosed with some details of the blood tests involved. Just send me a private message or email [e-mail] with your name and address.

[denden in reply to Paul_Howard]

please could you send me one as well? I am struggling ...

[Paul_Howard Partner LUPUS UK in reply to denden]

I think I've just posted a comment on your post offering you one. Of course you may have one Just send me a private message or email [e-mail] with your name and address.

[denden in reply to Paul_Howard]

thank you will do.

[misty14 in reply to Howsaboutit]

Hi Howsaboutit

Sorry to read of your health problems and difficulties getting a diagnosis.

Just wanted to say if your struggling financially and haven't thought of it, you could go to your local Citizens Advice Bureau who will see what help you could get and will help you fill in the claim forms. They have to be done in a certain way to maximise success chances!. Good luck for your Lupus Coag test result. Let us know how you get on.X

[Howsaboutit]

Thank you, i just dont have the energy for it all and the stress. Im hoping i start and get some answers next week x

[Howsaboutit]

Hi thank you for the pack,

Im now thinking that lupus will only be diagnosed with a positive ANCA

Its so complex

[Howsaboutit]

2 days to go to my appointment with haematology

[Howsaboutit]

A very late update but my second anticoag test came back neg. im still on the merry go round 😕