Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2014

Gabapetin and drug induced lupus?

Hi! Does anyone know how long its takes for Gabapetin to totally leave your body...without a trace? Im crummy at the calculations they do .... Also if you know...

Hi! Does anyone know how long its takes for Gabapetin to totally leave your body...

dgleds

•10 years ago

15 Replies

Irregular heart rate

Hi all, I'm hoping some of you might be able to shed some light on this for me. I've had shortness of breath since nov 2013 and have been diagnosed with...

Hi all, I'm hoping some of you might be able to shed some light on this for me. ...

Chempixie

•10 years ago

3 Replies

Help please!

Hi, new to the site and would appreciate any information you can give me. I was diagnosed SLE in November 2011 after having a bad year and positive dsDNA, ANA...

Hi, new to the site and would appreciate any information you can give me. I was ...

lorac1

•10 years ago

16 Replies

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Yet another reducing preds question?

OK some help please. I have been on methotrexate now for a few weeks and have built up from 10mg a week to 15mg, I have to get to 20mg increasing by 2.5mg...

OK some help please. I have been on methotrexate now for a few weeks and have bu...

Griggser

•10 years ago

3 Replies

Plaquinil (hydroxy) and tests?

Ok...so you have lupus....and your taking your plaquinil/hydroxychloroquin (sp),...I don't take steroids... Ok can you go for tests like ANA and the others,...

Ok...so you have lupus....and your taking your plaquinil/hydroxychloroquin (sp),...

dgleds

•10 years ago

6 Replies

Twitchy inner ear

Does anyone have experience with vibration in the ear? Like I have water in my ear, but don't. It twitches from time to time. Thought it was because I had a...

Does anyone have experience with vibration in the ear? Like I have water in my e...

Natura

•10 years ago

13 Replies

Been to GP. No help. Have you been there. Wish I'd gone to consultant first.

Hello everyone, I have seen a GP today who was checking my bloods to see if my Lupus is in flare. He said everything is normal but he didn't take smr I think...

Hello everyone, I have seen a GP today who was checking my bloods to see if my L...

friendly2013

•10 years ago

6 Replies

Got to see rheumatologist!!!!

Just got letter from rheumatologist and being referred to heamatologist because my serum lamba light chain assay is raised, what ever this means. Any one else...

Just got letter from rheumatologist and being referred to heamatologist because ...

KarenC

•10 years ago

4 Replies

How did you get diagnosed?

Hi all! I've come here after going through a long list of possible problems, my doctors have thought of everything from OCD & Anxiety to Diabetes. I am still...

Hi all! I've come here after going through a long list of possible problems, my ...

kittyIM

•10 years ago

5 Replies

Research study looking at transition from child to adult clinics for Rheumatology patients

This study from The University of Surrey is hoping to collect patient perspectives on their transition from child to adult clinics and how this can affect them...

This study from The University of Surrey is hoping to collect patient perspectiv...

Paul_Howard

Partner•10 years ago

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OCD anyone...?

Just wanted to quickly ask if anyone else has slightly ocd tendencies when frustrated by their conditions?

Just wanted to quickly ask if anyone else has slightly ocd tendencies when frust...

jojo-lianne

•10 years ago

4 Replies

Rituximab, I have been turned down for the funding for this drug again

I have two consultants, a Rheumatologist and a Respiratory Physician because I have Mixed Connective tissue disease with Interstitial Lung disease and all the...

I have two consultants, a Rheumatologist and a Respiratory Physician because I h...

Maureenpearl

•10 years ago

5 Replies

Hearing loss anyone?

Woke up this a.m. unable to hear in L ear. Feel dizzy, of course, & off-balance. No ringing in ear, just muffled sounds coming through. This happened to me...

Woke up this a.m. unable to hear in L ear. Feel dizzy, of course, & off-balance....

Maresy

•10 years ago

8 Replies

Frustrating !

So for the past week or so my left elbow, wrist have been really aching which is not great when I have a desk job. I happened to mention it to my husband last...

So for the past week or so my left elbow, wrist have been really aching which is...

Debbiemay

•10 years ago

6 Replies

Feeling ?????

Hi All I had my appointment yesterday and the Louise Coote Unit at St Thomas' and have coming away feeling..... I cant even describe it! Since December 2013 I...

Hi All I had my appointment yesterday and the Louise Coote Unit at St Thomas' a...

Kellyleg

•10 years ago

5 Replies

Rituximab....

Finished my 2nd dose of rituximab infusion yesterday. Just got to wait a couple of months before treatment takes affect. Still got these ulcers feet, trying...

Finished my 2nd dose of rituximab infusion yesterday. Just got to wait a couple ...

dzagotskillz

•10 years ago

3 Replies

Red Spotty Rash accompanied by joint pain?

Hi All -x- Im concerned about a permanent rash on my knee joint area (knee has Arthritis) which I thought was prickly heat .. now it has spread to my ankles...

Hi All -x- Im concerned about a permanent rash on my knee joint area (knee has A...

Elle-26

•10 years ago

3 Replies

Meetup for a cuppa and chat

Hi everyone. Anyone interested in meetup for a chat and cuppa. Have had a few newly diagnosed asking if we can meet and share info. Anyone interested inbox....

Hi everyone. Anyone interested in meetup for a chat and cuppa. Have had a few ne...

Pipido36

•10 years ago

13 Replies

Tremors

Thank you to everyone for your replies it just puts your mind at rest a little knowing your not on your own not sure wether everyone else gets it but because...

Thank you to everyone for your replies it just puts your mind at rest a little k...

Hodgson57

•10 years ago

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Photojournalist looking to recruit select participants for a project on the nature of illness

We have been approached by a photojournalist, Deborah, who is producing a photojournalism project on the nature of illness. As somebody who has lived with...

We have been approached by a photojournalist, Deborah, who is producing a photoj...

Paul_Howard

Partner•10 years ago

Be the first to reply

Feeling Down

I originally got diagnosed with RA at 16 and in the last 10 years my health has just got worse and my list of conditions has been growing longer and longer. I...

I originally got diagnosed with RA at 16 and in the last 10 years my health has ...

Buttercup87

•10 years ago

5 Replies

Holiday Abroad

Has any of my friends on here who suffer from Lupus SLE need on holiday in South Africa. if so were you ok travelling in a aeroplane.Could you walk da little...

Has any of my friends on here who suffer from Lupus SLE need on holiday in South...

Jennylyn

•10 years ago

18 Replies

Tremors

Hi everyone feeling down at moment not sure if it's because I have been off work sick last week and had time to sit and think think it's the tremors have...

Hi everyone feeling down at moment not sure if it's because I have been off work...

Hodgson57

•10 years ago

25 Replies

Connections between illness

I have Lupus, SS, and Fibromyalgia. I have had 3 mini strokes. My question is on doing family research my 2 aunties on my mothers side both had pernisous...

I have Lupus, SS, and Fibromyalgia. I have had 3 mini strokes. My question is on...

Gillyg

•10 years ago

3 Replies

Nifedipine pros and cons.

Hi Everyone. I may be changing my Raynauds Circulation Pill to Nifedipine and would like to know how effective it's been for fellow sufferers and any side...

Hi Everyone. I may be changing my Raynauds Circulation Pill to Nifedipine and wo...

misty14

•10 years ago

30 Replies

Hope

Hello fellow lupies. I just wanted to share with you a really interesting article in the Huffington post about the 'Functional Medicine' approach to treating...

Hello fellow lupies. I just wanted to share with you a really interesting artic...

Maya23

•10 years ago

10 Replies

Swelling driving me mad!

Hello my lovely fellow lupies! I am writing to see if anyone has the same problem as me and what I can do to fix it. Lately my left eye lid has become really...

Hello my lovely fellow lupies! I am writing to see if anyone has the same proble...

Fairydust11

•10 years ago

4 Replies

Vitamin B12

Good Afternoon. I was wondering if someone could help me in relation to blood test results I recently had done via my surgery checking for low levels in VIT...

Good Afternoon. I was wondering if someone could help me in relation to blood te...

crista1

•10 years ago

10 Replies

vasculitis

Hi, i was wondering if anyone else suffers from vasculitis? I had problems with my left hand back in jan where fingertips would go hot, swell n go deep red...

Hi, i was wondering if anyone else suffers from vasculitis? I had problems with ...

ush1401

•10 years ago

10 Replies

LUPUS UK is seeking a case study for a Lupus Awareness Month press release

We are currently putting the finishing touches to a press release ready to be sent out prior to Lupus Awareness Month in October. We are highlighting the need...

We are currently putting the finishing touches to a press release ready to be se...

Paul_Howard

Partner•10 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2014

Gabapetin and drug induced lupus?

Irregular heart rate

Help please!

Yet another reducing preds question?

Plaquinil (hydroxy) and tests?

Twitchy inner ear

Been to GP. No help. Have you been there. Wish I'd gone to consultant first.

Got to see rheumatologist!!!!

How did you get diagnosed?

Research study looking at transition from child to adult clinics for Rheumatology patients

OCD anyone...?

Rituximab, I have been turned down for the funding for this drug again

Hearing loss anyone?

Frustrating !

Feeling ?????

Rituximab....

Red Spotty Rash accompanied by joint pain?

Meetup for a cuppa and chat

Tremors

Photojournalist looking to recruit select participants for a project on the nature of illness

Feeling Down

Holiday Abroad

Tremors

Connections between illness

Nifedipine pros and cons.

Hope

Swelling driving me mad!

Vitamin B12

vasculitis

LUPUS UK is seeking a case study for a Lupus Awareness Month press release

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