Hi all, I've just come back from my rheumatologist and he's changing my immunosuppressant from mycophenolate to cyclosporine (because the disease has changed path and is now attacking my joints).
Are you taking/have you taken this? If so, how were the side effects for you? And which brand are you using?
Thank you.
Hi, I've been taking cyclosporine for over 12 months. I take 50mg a day split doses and have always taken Neoral. The GP prescribes it like that, the chemist reminding me to stick with the same brand. Side effect wise have been mild, slight headache and tingly fingers, extra sensitive feeling in fingers. My symptoms have improved on the whole, particularly those related to the CIDP so I'm pleased as there weren't many options left to halt symptoms. Good luck n hope that helps.
Thank you for your response. Understand that it can cause high blood pressure and kidney toxicity but then which drug doesn't give side effects. Have you found it helpful with joint pain, by any chance?
Have to say probably not as much as some other drugs did when I first started on them. For me the plaquenil seems at the moment to be helping the pain the most. It has had no effect on my blood pressure or renal function thank goodness, we all have enough to cope with as it is. X
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