Hello everyone! I just happened to stumble upon your forum today and really would appreciate any suggestions, advice and support that can be given.
Been recently diagnosed with alopecia secondary Lupus, and have been prescribed Hydroxychloroquine. I am totally oblivious as to what this means.
Does anyone knows what this REALLY means? Would you please explain without the medical jargon????
All I know is that my lovely hair is getting thin - have lost most of it from the crown of my head - and my skin and head burns like crazy - even more so now that the winter season is fast approaching. On some occasion, my feet and hands swells and goes bright red. The consultants have ruled out Rheumatoid Arthritis. There are days when I find it difficult to concentrate, total fatigue and just plain out of it. Then there seems to be some form of palpitation - again the doctors have said my heart is o.k. My right hand has grown so weak, I cannot lift 1 kg bag of sugar! This scares me because I'm right handed. The nape of neck feels as if it is crunching down into my spine made worse after engaging in neck rotation exercises.
Nobody seems to understand. I just feel so drained. Angry and frustrated. My GP seems to think that I have it all in my head. Really?
One day I was fun-loving, sociable with loads of friends and very active. The next: friendless, housebound and inactive - difficulty remembering stuff. Can anybody else relate to what I'm describing? Am I losing it?
All of the above came about after a back surgery in 2010/2011. Since then, suffer from stiffness and swelling in my lower back, cramps, electric spasms, etc in my leg and my mobility has been affected to the point where I am now wheelchair bound and depend on a carer to assist and escort me. What are some of the exercises that wheelchair users can engage in? Any suggestions?
I stay away from stressful environment because this triggers the Meniere.