Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,729 members • 28,088 posts

All posts for August 2014

Joints very bad this past two weeks

Hi all. I happened to go out in the sun two weeks ago for 10 mins without SPF and my arms were uncovered and my neck. That night I came out in a prominent sun...

Hi all. I happened to go out in the sun two weeks ago for 10 mins without SPF an...

bestbuddy

•10 years ago

6 Replies

chondritis

Have any lupus sufferers had problems with chondritis affecting their ears?

Ironbutterfly

•10 years ago

3 Replies

Steroids and weight

Hi, I started on 50mg prednisolone in June, and I'm now down to 30mg, and will be down to 15mg by end September. I'm also on azothiaprine and citalopram. I...

Hi, I started on 50mg prednisolone in June, and I'm now down to 30mg, and will b...

BexeT

•10 years ago

4 Replies

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seronegative lupus consultant

Hello, Does anyone know of a consultant rheumatologist in the York, Leeds, Hull area who believes and treats seronegative lupus. Thanks.

Hello, Does anyone know of a consultant rheumatologist in the York, Leeds, Hull ...

Whatamess2

•10 years ago

3 Replies

Help LUPUS UK have a chance at winning £1000!

Justgiving are hosting a competition on their website. Every charity that has 100 cares on its profile at the end of each week in August will be entered into a...

Justgiving are hosting a competition on their website. Every charity that has 10...

Paul_Howard

Partner•10 years ago

7 Replies

Just wondering what experiences my fellow "lupies" have had with fatigue?

Recently, I'm finding that overwhelming bouts of fatigue are coming on very quickly and within an hour, I feel like my whole body is a lead weight. If I am at...

Recently, I'm finding that overwhelming bouts of fatigue are coming on very quic...

Rockhopper

•10 years ago

2 Replies

Antinuclear Factor Question

Please could anyone tell me what an antinuclear factor of 2.3 equates to? It says on the form that it is "High" but there is no mention of a ratio or pattern....

Please could anyone tell me what an antinuclear factor of 2.3 equates to? It say...

DonnaldIW

•10 years ago

1 Reply

Thank you

Thank you to all who responded to my question about the blood test, I'd thought as much but was worth finding out, I have sle and a couple other things just to...

Thank you to all who responded to my question about the blood test, I'd thought ...

sezrill

•10 years ago

1 Reply

lupus sjogrens

I wonder does anyone else get a shaking inside ?I get it occasionally but its getting worse now,its like a horrible vibrating inside my tummy somewhere.I have...

I wonder does anyone else get a shaking inside ?I get it occasionally but its ge...

katepscot

•10 years ago

4 Replies

B12

I have SLE, Osteoathritus, Raynaurds and Mennierres I take the usual load of tablets but does anyone take B12 and if so should I be taking this aswell.

I have SLE, Osteoathritus, Raynaurds and Mennierres I take the usual load of tab...

ebril

•10 years ago

14 Replies

Pain under right Rib area? Gallbladder?

Ive been diagnosed with Discoid Lupus Erythematosus , Fibromyalgia, Sicca Syndrome, Arthritis, Spondylosis , Alopecia with loss of eyelashes and eyebrows and...

Ive been diagnosed with Discoid Lupus Erythematosus , Fibromyalgia, Sicca Syndro...

Elle-26

•10 years ago

12 Replies

Finally had my Lupus tattoo done :-)

My beautiful daughter treated me to a Lupus tattoo I have wanted done for a while now. Really pleased with it.

My beautiful daughter treated me to a Lupus tattoo I have wanted done for a whil...

mum-two

•10 years ago

6 Replies

Getting the shakes lately?

Anyone get the shakes? Almost like I am missing something in my diet, vitamins. Took a mineral supplement yesterday because I was getting the shakes and...

Anyone get the shakes? Almost like I am missing something in my diet, vitamins. ...

Natura

•10 years ago

20 Replies

Test

Does anyone know what blood test (the name) to have to see if your a carrier of lupus?

Does anyone know what blood test (the name) to have to see if your a carrier of ...

sezrill

•10 years ago

8 Replies

Reductions in meds!

Hello all Was diagnosed with lupus nephritis a year ago and my blood are finally stable. I am still leaking a bit of protein but the docs have decided to...

Hello all Was diagnosed with lupus nephritis a year ago and my blood are finally...

Heights69

•10 years ago

1 Reply

Hot Flushing

I no the weather has been v hot lately, but wonder if anyone else is going through same as me, I am continually getting these v hot flushing it seems to be...

I no the weather has been v hot lately, but wonder if anyone else is going throu...

bodyache

•10 years ago

7 Replies

would you describe SLE as progressive ?

My mum did some research for me and found somewhere that said after you've had SLE for 10 years you have reached your height of severity . I have only had it...

My mum did some research for me and found somewhere that said after you've had S...

hanb27

•10 years ago

14 Replies

bloods

high I have sle and now having blood probs my crp has elevated to 16 ,my ferratin is 169 my e&u is 39 anyone now what these test are indecation had them...

high I have sle and now having blood probs my crp has elevated to 16 ,my ferrati...

debby197

•10 years ago

4 Replies

Plaquenil and dark circles

Hi all, I recently discovered I have lupus and I have been prescribed plaquenil by my rhemy. So I have been taking 400 mg daily for about 4 months now without...

Hi all, I recently discovered I have lupus and I have been prescribed plaquenil...

RiaK

•10 years ago

8 Replies

Eye opener#

I have to say it is such an exhilerating feeling to know that i'm not a hypochondriac, attention seeking phony! I know you all suffer and have highs and lows...

I have to say it is such an exhilerating feeling to know that i'm not a hypochon...

Kimdarren

•10 years ago

7 Replies

Tiredness!!!

Hi, I know tiredness and fatigue is a main symptom of lupus and there's not a lot we can do about it but does anyone know of anything that can help wake me up...

Hi, I know tiredness and fatigue is a main symptom of lupus and there's not a lo...

Lucy86

•10 years ago

10 Replies

Newbie

Hi all sorry bit of a long post, thought i would introduce myself im a 35yr old stay at home mum from scotland. I have not been diagnosed yet but was finally...

Hi all sorry bit of a long post, thought i would introduce myself im a 35yr old ...

suziemeeee

•10 years ago

4 Replies

Leucopoenia?

Can anybody tell me what this is

ladylou

•10 years ago

11 Replies

prescription costs

Does anyone know if SLE diagnosis means you are entitle to free prescriptions? The increasing amount of medication is getting pricey !! Rheumy also advised...

Does anyone know if SLE diagnosis means you are entitle to free prescriptions? T...

hanb27

•10 years ago

23 Replies

Ana

Hi my bloods always indicate my ANAs as negative and my levels of whatever are always within normal range. What does this mean please?

Hi my bloods always indicate my ANAs as negative and my levels of whatever are a...

MandaM

•10 years ago

14 Replies

Random sites for Lupus rash

Has anyone experienecd lupus rash randomly apprearing on say your arms or feet when they havent been exposed to sun? Rhumy has confirmed it is a Lupus flare,...

Has anyone experienecd lupus rash randomly apprearing on say your arms or feet w...

Bexs18

•10 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2014

Joints very bad this past two weeks

chondritis

Steroids and weight

seronegative lupus consultant

Help LUPUS UK have a chance at winning £1000!

Just wondering what experiences my fellow "lupies" have had with fatigue?

Antinuclear Factor Question

Thank you

lupus sjogrens

B12

Pain under right Rib area? Gallbladder?

Finally had my Lupus tattoo done :-)

Getting the shakes lately?

Test

Reductions in meds!

Hot Flushing

would you describe SLE as progressive ?

bloods

Plaquenil and dark circles

Eye opener#

Tiredness!!!

Newbie

Leucopoenia?

prescription costs

Ana

Random sites for Lupus rash

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