lupus sjogrens : I wonder does anyone else get a... - LUPUS UK

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lupus sjogrens

katepscot profile image
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I wonder does anyone else get a shaking inside ?I get it occasionally but its getting worse now,its like a horrible vibrating inside my tummy somewhere.I have diverticulitis too,so dunno if its that or the lupus or sjogrens.I take no drugs for these conditions (yet)

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katepscot profile image
katepscot
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Purpletop profile image
Purpletop

Yes, I have that - like a tremor. Not all the time, on and off. I first thought it is some kind of aneurysm but apparently that causes bulging where it pulsates and I don't have that. The tremor isn't always in the same place - sometimes upper left, other times upper right or even middle of tummy.

I mentioned it to my gastroenterologist, he palpated the tummy but found nothing unusual.

I have lupus and diverticulitis, not Sjogren.

Each time I have developed an new autoimmune disorder or have a flare I feel as if I have had a huge shot of caffeine. I feel generally shaky and as if I have butterflies in my stomach. I have very disturbed sleep, and often wake at 3 or 4 am unable to fall asleep again. This happens some time before anything abnormal shows up in blood tests. I also feel as if I could burst into tears at any moment and have to make a huge effort all day not to. I suppose it's a bit like having an ongoing panic attack. But I don't think I have ever felt an actual vibrating.

barbdockeray profile image
barbdockeray

Thankful other fellow suffers thought i was going mad its a very uneasy feeling ..i get iit in my left thigh like a constant vibration ..x

Shadows-walker profile image
Shadows-walker

Hi I went off work with in jan pain in arm and palpating around chest really scary also breathless I have fibo as well ,they have nothing wrong with my heart but they are still concerned won't let me work , they have told me I have multi skelotor conective tissue desease now ,last month it was undiferentiated C T D every time I go I get a different title I just go with it now they are happy with raynaulds and sjorgrens and fibro and a few other bits ,I am on duloxtine for nueralgia pain and folic acid for my heart ,but I get so tired if I do anything if I pick up in myself and start to do things I then end up back at square one ,off to a pain clinic in a few weeks the thing is I can cope with the pain but it's the exhaustion after I and headaches that s the worst ,I have had lupus anti body's but they say it's not lupus so I just go with it as the drugs to treat us is just about the same , keep your chin up x

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