Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,730 members • 28,088 posts

All posts for August 2014

Muscle pain in upper arms and thighs with extremely sensitive skin?

Hi All, Recently I've been experiencing extremely stuff and painful muscles in both upper arms and my thighs. Also my skin is very sensitive to touch...it...

Hi All, Recently I've been experiencing extremely stuff and painful muscles in b...

Rockhopper

•10 years ago

3 Replies

Teesside Lupus support group meeting

25 October 2014 From 2 to 4 pm Everyone is welcome! Inbox for more details if you would like to attend. Take care xx

25 October 2014 From 2 to 4 pm Everyone is welcome! Inbox for more details if yo...

Pipido36

•10 years ago

4 Replies

Yorkshire group

does anyone have contact details or info on the Yorkshire group? Im North Yorkshire if that makes any odds?! Thanks

does anyone have contact details or info on the Yorkshire group? Im North Yorksh...

hanb27

•10 years ago

3 Replies

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My friend got drunk and told me that she thinks I just make it all up .. the fatigue, etc ..

One of my best friends got drunk one night and told me she was going to tell me something that I wouldn't like to hear. She went on to say that she thinks I...

One of my best friends got drunk one night and told me she was going to tell me ...

Hidden

•10 years ago

24 Replies

Is 25 Presidine alot? What are the side effects on this dose?

Hi, does anyone take a high doseage of this steroid? A close friend of mine is on 7 g(mg??) and has been getting sick recently the docs have told him to...

Hi, does anyone take a high doseage of this steroid? A close friend of mine is o...

Hidden

•10 years ago

12 Replies

rare complication bowel

I was belatedly diagnosed with pseudo bowel obstruction a rare complication of Lupus. It was just by chance when I was in the HDU after my 15th laparotomy for...

I was belatedly diagnosed with pseudo bowel obstruction a rare complication of L...

Versailles

•10 years ago

9 Replies

Stoped taking plaqunil

WAS WONDERING IF ANYONES DOCTOR TOOK THEM OFF PLAQUNIL MY DOCTOR SAID THEY DID NOT WANT ME ON IT FOR LONG TERM BUT I THOUGHT THAT DRUG HE;PED LUPUS NOT GET...

WAS WONDERING IF ANYONES DOCTOR TOOK THEM OFF PLAQUNIL MY DOCTOR SAID THEY DID N...

Diane48

•10 years ago

15 Replies

Hip pain - thigh bone out of socket.

When in flare I wake every morning like the Tin Man. Yesterday my right hip didnt stop hurting or loosen up through the day. This morning I had to get up...

When in flare I wake every morning like the Tin Man. Yesterday my right hip didn...

Bonnie39

•10 years ago

3 Replies

Esr

I Collected the two previous blood results today while having my monthly bloods taken and was told the ESR for June was 106 and July was 113 I have never had...

I Collected the two previous blood results today while having my monthly bloods ...

gco34

•10 years ago

5 Replies

Would you be happy to share your experiences of claiming ESA as a case study?

As part of our partnership with ARMA (The Arthritis and Musculoskeletal Alliance), we are looking for a few case studies of people who have claimed Employment...

As part of our partnership with ARMA (The Arthritis and Musculoskeletal Alliance...

Paul_Howard

Partner•10 years ago

5 Replies

Pilocarpine

Has anyone tried this medication? I've been having problems with dry/sore throat that's probably in a flare and my normal spray is not having any effect. The...

Has anyone tried this medication? I've been having problems with dry/sore throat...

Chris21

•10 years ago

5 Replies

frustrated meds, condition, lupus?thyroid? post meno? bloat?

Im frustrated:( This happens often...Im hypothyroid, but pretty sure my range is ok now....checked again soon...last was 1.7 ,and Im on synthroid.....I have...

Im frustrated:( This happens often...Im hypothyroid, but pretty sure my range is...

dgleds

•10 years ago

19 Replies

Crochet Butterflies for LUPUS UK Awareness Month

I've not been on here for a long while, as Lupies you will all know the reasons why :0) x I have been over the past 18 months going through some intense...

I've not been on here for a long while, as Lupies you will all know the reasons...

BaileyD

•10 years ago

3 Replies

Any advice

Got the start of a flare....legs feel as if they can't hold my weight, rash on my face and of course our old friend fatigue has decided to join the party! On...

Got the start of a flare....legs feel as if they can't hold my weight, rash on m...

chandlermandy

•10 years ago

9 Replies

Recipes and Cookbooks

Hello, has any body tried the Lupus Recovery diet? Lupus Freedom cookbook? Or does anybody recommend any good lupus cook books/recipes? I am trying to change...

Hello, has any body tried the Lupus Recovery diet? Lupus Freedom cookbook? Or do...

Hidden

•10 years ago

19 Replies

cutaneous lupus erythematosus

Hi have just recieved my results back from a skin biopsy I had which suggests I have cutaneous lupus erythematosus. I have a appointment with the...

Hi have just recieved my results back from a skin biopsy I had which suggests I ...

MariaSkoof

•10 years ago

5 Replies

Cold sores

Woke up yesterday with cold sores all over my mouth today they have covered my mouth completely and are huge and very sore I'm using cream for them but my...

Woke up yesterday with cold sores all over my mouth today they have covered my m...

ebril

•10 years ago

5 Replies

First appointment for the rheumatologist

Could someone please give me a clue what to expect when a see the rheumatologist for the first time a have a lot of symptoms to suggest I'm suffering from...

Could someone please give me a clue what to expect when a see the rheumatologist...

reeneroo

•10 years ago

6 Replies

Increased Energy tips

Hi all, I just wanted to share some things that have really helped me feel more human again!! I suffered from reallllllyyyyy low energy levels, but I went to...

Hi all, I just wanted to share some things that have really helped me feel mor...

lilliekinz

•10 years ago

5 Replies

Lupus and Menstrual Cycle

I always had severe problems with my periods since I started them as a child, I would vomit and have to take time off school. My Mum had enough of seeing me...

I always had severe problems with my periods since I started them as a child, I ...

tracysmilie

•10 years ago

17 Replies

Heavy menstrual bleeding

Hi all, I was diagnosed with 'possibly having Lupus' around 18 months ago and I've been struggling with what symptoms may or may not be associated with the...

Hi all, I was diagnosed with 'possibly having Lupus' around 18 months ago and I'...

MelAlice

•10 years ago

6 Replies

Have you been discharged too early? Share your story in the Daily Mail.

Hi everyone, We've been approached by a free-lance journalist working for the Daily Mail who is writing an article for their Good Health Section. They are...

Hi everyone, We've been approached by a free-lance journalist working for the D...

Paul_Howard

Partner•10 years ago

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Lupus and Traveling

Hi everyone, I'm currently living in New Zealand and planning to travel around NZ and Austrailia. I wrote have written a blog about my journey which was...

Hi everyone, I'm currently living in New Zealand and planning to travel around ...

Melgarnett1988

•10 years ago

2 Replies

Pulmonary Embolism

I have had Lupus for 13 years. It affects mostly my mobility, I use wheelchair, walking stick, crutches and mobility scooter. I am very claustrophobic and had...

I have had Lupus for 13 years. It affects mostly my mobility, I use wheelchair, ...

gracekunda

•10 years ago

5 Replies

Quick query about iv Rituximab- anyone else here getting it & finding it definitely seems to help your lung problems?

(Can I write here too?) Bit new to the site. My basic medical background is v complicated with primary problems over 14 years of Lupus & M.C.T.D- both...

(Can I write here too?) Bit new to the site. My basic medical background is v co...

CMac13

•10 years ago

9 Replies

Swollen Liver

I am being treated for Lupus, RA and APS with my main drug being Rituxan infusions. While I am virtually a non drinker and eat a very healthy diet and am...

I am being treated for Lupus, RA and APS with my main drug being Rituxan infusio...

zzcat

•10 years ago

6 Replies

Lupus

I have corns under both feet my feet it feels like my feet are going to split in half dose anyone with lupus have the same problem? My feet are very red and...

I have corns under both feet my feet it feels like my feet are going to split ...

djsema

•10 years ago

4 Replies

prescription charges petition

Going back to my recent post about prescription charges, those of you who are interested may want to follow the link to sign a petition to end unfair charges...

Going back to my recent post about prescription charges, those of you who are in...

hanb27

•10 years ago

6 Replies

Sleepless in ?

Hi everyone, I'm new to the forum but just wanted to share a few thoughts. I wonder how many of us wake at night feeling alone and afraid, waiting for the...

Hi everyone, I'm new to the forum but just wanted to share a few thoughts. I wo...

Ironbutterfly

•10 years ago

7 Replies

Lupus and testing

I feel your pain I have been not right for a while and since I am 42 I figured it could be menopause but when the pain started I still thought it was a passing...

I feel your pain I have been not right for a while and since I am 42 I figured i...

123becomi

•10 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2014

Muscle pain in upper arms and thighs with extremely sensitive skin?

Teesside Lupus support group meeting

Yorkshire group

My friend got drunk and told me that she thinks I just make it all up .. the fatigue, etc ..

Is 25 Presidine alot? What are the side effects on this dose?

rare complication bowel

Stoped taking plaqunil

Hip pain - thigh bone out of socket.

Esr

Would you be happy to share your experiences of claiming ESA as a case study?

Pilocarpine

frustrated meds, condition, lupus?thyroid? post meno? bloat?

Crochet Butterflies for LUPUS UK Awareness Month

Any advice

Recipes and Cookbooks

cutaneous lupus erythematosus

Cold sores

First appointment for the rheumatologist

Increased Energy tips

Lupus and Menstrual Cycle

Heavy menstrual bleeding

Have you been discharged too early? Share your story in the Daily Mail.

Lupus and Traveling

Pulmonary Embolism

Quick query about iv Rituximab- anyone else here getting it & finding it definitely seems to help your lung problems?

Swollen Liver

Lupus

prescription charges petition

Sleepless in ?

Lupus and testing

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