Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2014

cancelled operation

Dear all, I am really upset, the surgery on Monday for my chronic painful shoulder has had to be cancelled due to having dangerously high blood pressure. Let...

Dear all, I am really upset, the surgery on Monday for my chronic painful shoul...

bestbuddy

•10 years ago

6 Replies

My daughter has developed SLE Lupus after taking the cervical cancer vaccine. Has anyone suffered the same fate?

robpeco

•10 years ago

79 Replies

Hospital s where do people go

Just wondering how many people on this site go to st thomas 's lupus thrust the Louise coote unit and what ye think or if there is some where better or is...

Just wondering how many people on this site go to st thomas 's lupus thrust the ...

Limerick5

•10 years ago

4 Replies

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Hi does anyone know a lupus specialist in North Kent UK please? Thank you x

Suzywong82

•10 years ago

2 Replies

Anyone taking Benlysta in the UK?

I'm wondering why so many women are taking the anti-malaria medications instead of the Benlysta for their Lupus. Does the UK not allow you to take it? I'm...

I'm wondering why so many women are taking the anti-malaria medications instead ...

MOE69

•10 years ago

20 Replies

What dose Mycophenolate is "normal"?

My dosage is gradually is going up and I am now on 1.5mg twice a day (3mg total). I was put on this dose today as my antibodies were raised. Is this an average...

My dosage is gradually is going up and I am now on 1.5mg twice a day (3mg total)...

DaleDiva

•10 years ago

4 Replies

Hydroxy weight gain

Since I started taking hydroxychloriquine last year I've gained a stone in weight and simply can't lose it. Has anyone else had this problem? And more...

Since I started taking hydroxychloriquine last year I've gained a stone in weigh...

Chicklette

•10 years ago

14 Replies

Benefits! Help!

Hey all Just wanted to see if anyone knows about any extra help I can get? I had to reduce my hours at work in January to 27.5 a week. It turns out (and I...

Hey all Just wanted to see if anyone knows about any extra help I can get? I ...

natal1a

•10 years ago

7 Replies

Had a phone call from rhuemy yesterday conserning positive anti RNP

Have been told that need to have more tests done but she said looks as though i have a CTD of some kind she reassured me that because all other tests have come...

Have been told that need to have more tests done but she said looks as though i ...

Hopey

•10 years ago

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what are the possible ways of treating polycistic ovarian cysyts in child bearing aged young adult?

I was diagnosed with ovarian cyst in July of 2013 but I have not been able uptil date to reach a gynecologist because of personal reasons and the healthcare...

I was diagnosed with ovarian cyst in July of 2013 but I have not been able uptil...

mbClaire87

•10 years ago

4 Replies

Can't breathe properly

Woke up this morning ,, can't take a deep breath ,, coughing so much ,, can't catch my breath ,, every time I'm coughing weeing ! ,, stress lately has been ott...

Woke up this morning ,, can't take a deep breath ,, coughing so much ,, can't ca...

Lupiemum

•10 years ago

13 Replies

Hi all hope you are well

Strange experience at drs today took symptoms list for dr to look at before seeing rheumy on Friday .dr said it was fine and asked if I had enough medication,...

Strange experience at drs today took symptoms list for dr to look at before seei...

Alan55

•10 years ago

4 Replies

Thank you Etc

Hi, some of you have been collecting Sainsburys Activ Kids tokens at the the checkout when you shop, and posting them to my local hospital school room. Thank...

Hi, some of you have been collecting Sainsburys Activ Kids tokens at the the che...

MaryF

•10 years ago

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I have had Chicken pox has a child but my grandaughter has gone down with it and I look after her is this a problem if I have Lupus.

I have Lupus, SS and Fibromyalgia and on a cocktail of drugs including prednisolone. It is very hard not to look after them or see them just because they are...

I have Lupus, SS and Fibromyalgia and on a cocktail of drugs including prednisol...

Gillyg

•10 years ago

7 Replies

Am I pushing my body too much?

I did a lot this weekend between yard work, bike riding and golf. I sort of crashed every night early. Can't even make it to 8 pm some nights. Yesterday, I did...

I did a lot this weekend between yard work, bike riding and golf. I sort of cras...

Natura

•10 years ago

30 Replies

Underactive Thyroid and Lupus?

Hi everyone, I just wanted to see if anyone has had any experience with an underactive Thyroid? I have been living with Lupus for 8 years now and lately I...

Hi everyone, I just wanted to see if anyone has had any experience with an unde...

yasmine

•10 years ago

11 Replies

Does anyone else go through times when you don't think there is anything wrong and its all your own doing. need to pull your self together!

I can remember the initial time I couldn't get out of bed and how long I was off sick. I know I'm on meds and I know it's 'still evolving'. I still get fatigue...

I can remember the initial time I couldn't get out of bed and how long I was off...

Whathappned

•10 years ago

27 Replies

Just when you taught you were having a good few days you crash you car

Was doing so well for the last week or so even said this morning that I have had no pain feel good not to tired and I go and crash my car no body hurt just car...

Was doing so well for the last week or so even said this morning that I have had...

Limerick5

•10 years ago

5 Replies

Nasal sores - what are the lupus nasal sores like? I have developed a large sore/blister on the outside of my nose. It is very painful. I ha

Have had one on the inside of my nose for months and that one was just healing. So, what with being on my 6th month of meds (Hydroxychloroquine 200mg, twice a...

Have had one on the inside of my nose for months and that one was just healing. ...

Wendy39

•10 years ago

30 Replies

Sore throat - I have had a sore throat for months. It hurts every day. Some days are worse than others. I was diagnosed in November and am i

Into my 6th month of meds - Hydroxychloroquine 200mg twice a day. Most of my symptoms are much better but I am certainly not symptoms free. My GP checked for...

Into my 6th month of meds - Hydroxychloroquine 200mg twice a day. Most of my sym...

Wendy39

•10 years ago

5 Replies

Can emotional bullying agony exacerbate/ cause severe systemic lupus outbreaks

singerohyeah

•10 years ago

13 Replies

Here we go again , dropped steroids Saturday feel like s*** this morning aching,shaking and bloody cold have to put up with it

Good news is c rheumatologist on Friday could be interesting have a good day everyone Alan

Good news is c rheumatologist on Friday could be interesting have a good day eve...

Alan55

•10 years ago

20 Replies

Can we have a life?

Hi everyone my problem is that when I feel ok I over do it, I think we are all guilty of this. But how do we know how far too push ourselves? I ache all over...

Hi everyone my problem is that when I feel ok I over do it, I think we are all g...

lucylockett

•10 years ago

32 Replies

Chest Pain

I am also having chest pain on the upper right side of my chest, it has been going on for a few months now off and on. I have been to 2 doctors now who...

I am also having chest pain on the upper right side of my chest, it has been goi...

Hidden

•10 years ago

7 Replies

Could this be lupus ?

Hello I have had so many symptoms for a number if years had blood test after blood test, all being normal. For the last year and a half just getting worse....

Hello I have had so many symptoms for a number if years had blood test after blo...

Staffychick

•10 years ago

5 Replies

Routine blood test showed I'm iron deficient aneamic. Doc immediately has arranged colonscopy and endoscopy . Reading everything all point.

To colon cancer 100 percent No other symptoms and terrified

janenenis

•10 years ago

14 Replies

depressed.

I am not having a good day today, i just feel like crying. I sometimes wished i wasn't here. But i just try and put those thoughts out of my mind. I feel i...

I am not having a good day today, i just feel like crying. I sometimes wished i ...

sandwiches

•10 years ago

27 Replies

To PANIC or not to PANIC that is the question

I'm diagnosed SLE, Discoid, Reynauds, Sjorgens and am now at the point of utter panic. Normally I can talk myself into acceptance of things but the latest has...

I'm diagnosed SLE, Discoid, Reynauds, Sjorgens and am now at the point of utter ...

KathinAyrshire

•10 years ago

18 Replies

I was diagnosed 3 weeks ago with Lupus . Three days ago I developed. Rash on my stomach/arms. How long does the rash last?

royalsmom7

•10 years ago

3 Replies

Since being told i have lupus i have found my eyesight is getting worse .very worried ..only wore glasses sometimes now have to wear always

barbdockeray

•10 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2014

cancelled operation

My daughter has developed SLE Lupus after taking the cervical cancer vaccine. Has anyone suffered the same fate?

Hospital s where do people go

Hi does anyone know a lupus specialist in North Kent UK please? Thank you x

Anyone taking Benlysta in the UK?

What dose Mycophenolate is "normal"?

Hydroxy weight gain

Benefits! Help!

Had a phone call from rhuemy yesterday conserning positive anti RNP

what are the possible ways of treating polycistic ovarian cysyts in child bearing aged young adult?

Can't breathe properly

Hi all hope you are well

Thank you Etc

I have had Chicken pox has a child but my grandaughter has gone down with it and I look after her is this a problem if I have Lupus.

Am I pushing my body too much?

Underactive Thyroid and Lupus?

Does anyone else go through times when you don't think there is anything wrong and its all your own doing. need to pull your self together!

Just when you taught you were having a good few days you crash you car

Nasal sores - what are the lupus nasal sores like? I have developed a large sore/blister on the outside of my nose. It is very painful. I ha

Sore throat - I have had a sore throat for months. It hurts every day. Some days are worse than others. I was diagnosed in November and am i

Can emotional bullying agony exacerbate/ cause severe systemic lupus outbreaks

Here we go again , dropped steroids Saturday feel like s*** this morning aching,shaking and bloody cold have to put up with it

Can we have a life?

Chest Pain

Could this be lupus ?

Routine blood test showed I'm iron deficient aneamic. Doc immediately has arranged colonscopy and endoscopy . Reading everything all point.

depressed.

To PANIC or not to PANIC that is the question

I was diagnosed 3 weeks ago with Lupus . Three days ago I developed. Rash on my stomach/arms. How long does the rash last?

Since being told i have lupus i have found my eyesight is getting worse .very worried ..only wore glasses sometimes now have to wear always

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