Since being told i have lupus i have found my eye... - LUPUS UK
Since being told i have lupus i have found my eyesight is getting worse .very worried ..only wore glasses sometimes now have to wear always
Same with me barbdockeray, my family all have good eyesight,(and I have a large family). You expect to need specs to read as you age, but I now have to wear them all the time. I saw an optician last October, who said I needed 2 pairs of glasses. One for reading and the other for long distance. "When do I wear the long distance ones?, I stupidly said", all the time, replied the optician. She was more shocked at my naievity, than I was at needing specs 24/7 . I hate wearing them, they steam up and are uncomfortable at times. I also hate the fact that I can now see huge wrinkles on my face !!!! ..........I blame the hydroxy, am on 400mg daily, and it is notorious for this long term. I have been on it for 10 yrs or so. I'm sure that my eyesight has deteriorated even since October, as glasses are not as clear as they were. Very expensive business.
When were you diagnosed? Are you on Plaqiinil/Hydroxychloriquine? Were your eyes tested when you started drug? This would have been done by hospital. If the change has been since you commenced the drug get your eyes tested assp and tell the optician you are on this drug. If none of this resonates then it may ve entirely unconnected to the lupus xx
Hi i was on plaqinil but had a severe allergic reaction .so was put on meqacrine .working better apart from turning yellow( look very healthy ) ....x
Not sure if that is still quinine based. If it is, it can affect the eyes. Best to speak to opticians if it is quinine based as certain peoples eyes can be affected by it xx
Thanks sarah will do that .see what they say .x
I had similar experience, my eyesight started getting worse and I needed stronger glasses for reading every year. Then I realised that there are days when I feel healthwise well and as a result my eyesight is much better again. I have spent lots of money on getting new glasses every year, as the optician encourages you to do that to get their money. Now, I just tell them that my eyesight fluctuates and that I just need an eye check but not a new pair of glasses if everything else is fine. I have heard that the eye problem caused by Plaquenil is apparently much more dramatic and sudden. But don't take my word for it and do your research or ask specialist. I guess there must be a post explaining this on this site.
Hi Barbdockeray, if you are worried about your eyesight insist that you are referred to an ophthamologist. I was prescribed prednisolone and hydroxy when i was first daignosed. I didn't have a preliminary eyesight examination, and had perfect eyesight before the lupus struck. After about four months, I noticed the sight in my right eye was fuzzy but put that down to not sleeping because of the prednisolone. I was told to just go for a routine eye test. I did at Boots. They were alarmed. I had lost about 40% of my sight in my right eye by then. They wrote to my GP who referred me to an ophthamologist. But two weeks after going to Boots, I lost all sight in my right eye. My retina had become detached. Even now, we can't say for sure if it was because of the medication, or just the lupus attacking the cells in my eye. We're all different, and I don't want to alarm you. But please don't take any chances with your eyesight. They could only partially restore the sight in my eye, but it's had such a huge impact on my life. I can put up with the joint pains, the fatigue, the terrible skin, but if there was one thing I could have back, it would be to have the perfect sight back in that eye.
thankyou i am getting worriec about it have made appointment with docs and got appointment on the 2 june with dermatology .will talk it over with him .if docs not helpful ...thankyou .
