I'm wondering why so many women are taking the anti-malaria medications instead of the Benlysta for their Lupus. Does the UK not allow you to take it? I'm going to attach a link regarding Zoladex(used in treating Endo). The side effects interact with the anti-malarial drugs, narcotic pain meds and steriods that many of you seem to be taking so it concerns me that you may not be informed. I was diagnosed with Endo roughly 4 years ago, have gone thru 5 laproscopic surgeries and I refused to take the Lupron that my gyno prescribed because it's too dangerous!! I am going to Rheumatoid dr. today to find out for sure if I do have Lupus. I meet 6 out of 11 US criteria and have been having symptoms( including breast swelling and pain) since I was in my late teens. I finally got a new doctor to listen to me about possible Lupus in January of this year after running high fevers, joints exploding, headaches, serious fatigue, numbness in both legs lasting for days, numbness in right arm, chest pain, back pain, etc. etc. etc. I just hope I can get an answer to all these problems!! My marriage has suffered greatly for so many years...until the doctor agreed with me to look into Lupus. Now things seem to be getting better between us and he actually offers some support so I don't feel so damn alone with this. He suggested I find a group outside of the US to see what other treatment options might be. I came across this group and decided to join after seeing the posts saying that many of you were still on the anti-malarial drugs. Benlysta was specifically designed for Lupus and was finally approved in August 2013. Many patients in the US are having "remission" type experiences after being off the anti-malarial drugs. Here is the link on Zolandex:
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