Can emotional bullying agony exacerbate/ cause se... - LUPUS UK

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Can emotional bullying agony exacerbate/ cause severe systemic lupus outbreaks

singerohyeah profile image
13 Replies
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singerohyeah profile image
singerohyeah
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13 Replies
Purpletop profile image
Purpletop

Stress can - the more stress you experience, the more wound up the immune system gets.

Tigerlily4 profile image
Tigerlily4

Definitely! Not good for well people either. It's never easy but try to limit the stressors in your life. Doing battle against this wretched blight on a daily basis is more than enough to cope with. Hugs x

Natura profile image
Natura

I am getting very stressed from my 14 yr old daughter who fights me on getting up every morning for school, doing homework and just taking care of herself..I am exhausted by the time I get back from dropping her off at school. So hard to keep stress low in day to day living. I am fortunate in that I don't work and can sit down and rest when I get back. But, then I have the guilt of my husband working so hard, and his not feeling strong in his late 40's. What's the answer? We are both just trying to live a happy life long enough till our children grow up and can take care of themselves. How sad is that? What is going on in the world today?

Tigerlily4 profile image
Tigerlily4

Awwww Natura, I so empathise. My son turned into the teenager from hell aged 13 and ran me absolutely ragged for a decade. Hormones have a lot to answer for! Ride the storm as best you can and ask for help via your GP if necessary. Also, please know, although it doesn't feel like it now, the nonsense will end and she'll morph into a perfectly nice adult eventually. Hugs x

Yes it definitely can because Lupus is an autoimmune disease and all these diseases are very responsive to how we are feeling. Also being in the middle of a flare or feeling very unwell seems to bring out bullying behaviour in others I have found. It is almost as if our vulnerability makes us a sitting target sometimes - whether the aggression comes from a boss or colleague or a supposed "friend" or even others with similar problems to ours. Are you having a bad time just now - is this why you ask?

Cann profile image
Cann in reply to

Yes, I notice it and called it 'survival of the fittest' - it is as if you are the perfect target if unwell.

I suspect this is why so many people keep their illness to themselves; for fear of being attacked! The best way of dealing with it is to stamp on it straight away even if you feel weak - find that strong spirit within and surprise them - it may take time, but if it is someone you live with - it eventually works, I know, because I've done it - but, boy, did it take some time - incidences gradually become fewer and further apart - there's hope, don't give up!

SarahHeney profile image
SarahHeney

Yes it can. Are you needing some extra support just now? X

Lupoid profile image
Lupoid

A few years ago I found myself in a constant cycle of going down hill then making rapid recovery. After a long time of thinking it was unpredictable I spotted the pattern. It was down to the working relationship with my boss at the time. I spent about 50% of my time off work there because of him. I now work in an environment where it's high pressure (the operations office of one of the world's largest fashion retailers) but my relationship with my colleagues means it is true pressure and not stress. I've had 4 sick days in the last two years...

Whathappned profile image
Whathappned

I'm sure stress is a link. I often find it causes brain fog and increased fatigue. These are my main symptoms but I find they have been the reason I have had to adapt my life. Bullying of any sort must have an effect also, although I havent had that for some time.

When it is busy at work I can manage and I can sort out problems but once I get too tired and stressed then I can feel the fog and cognitive effects come on.

I find I am unable to process what's going on. It's like someone is speaking gobbledygook and therefore I cannot answer and definately not form my own argument to most discussions. My memory is non- existent normally and this makes things worse, which I have mentioned to doctors but it doesn't seem to be there priority at the minute. They are trying to do their part in controlling the disease with meds and prevent further increase in DNA and the CK.

I'm off to see the nurse today so I might try and remember ;) to mention it.

But after all my ramble. Are you ok? Are you having these problems? You mention bullying but that is all. Bullying or harassment is unacceptable in ANY situation.

Xxxxx

SmilingToots profile image
SmilingToots

Absolutely.

Stress is one of the main triggers for a flare.

I go to yoga and I utilise the breathing to calm down when getting stressed.

It sometimes works!

Kedaco profile image
Kedaco

Stress makes me fell ill and it will bring on a flare-up, I have had a lots of stress with my son since his mum left us 4 years ago he got in with the wrong people and because of being ill I couldn't do much to stop him, he is a bit better now but still is the course of most of my stress, but I will always stick by him because that is what us Dads or Mums do.

I agree with Cann - it is why society often scapegoats people with disabilities. But what is really important is that we support each other on these forums. And on that note I'm concerned that you haven't told us about yourself and how you are coping Singerohyeah? How are you and what prompted this question?

Warm wishes, Twitchy

dianedeaton60 profile image
dianedeaton60

I went to a new doctor today about my Lupus and he was explaining how Lupus works and when it comes on stronger. He said that Hard stress makes the Lupus worse because your brain goes into overload and then sends out messages to your body and then the flare up comes on full force. No one can live a stress free life. It is when you have things that hurt in your body that you have cut off the pain thinking you will get over it then all of a sudden Stress hits full force and then every pain you had comes out with Stress. I have always been a very high strung person. Now with Lupus, the pain becomes unbearable.

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