Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,818 members • 28,154 posts

All posts for April 2014

I have recently been diagnosed with SLE and am allergic to UVA and use factor 50+ sunscreen but wondered if it is necessary to buy a hat

With uv protection or will a normal straw hat be ok. Also my dermatologist had advised museum film for house windows and. Car windows. Does anyone have these...

With uv protection or will a normal straw hat be ok. Also my dermatologist had ...

loulou2209

•10 years ago

23 Replies

Anyone not feeling like eating anymore?

I guess I will lose some weight. Every time I look for something to eat, I hesitate. I think, wow, I am going to feel that later, and I am going to be very...

I guess I will lose some weight. Every time I look for something to eat, I hesit...

Natura

•10 years ago

12 Replies

So, how did people here get their diagnosis?

I have been unwell for over three years. Longer if you count my stroke, migraines, joint problems etc. 9 years ago I had a strokr. 6 years ago my...

I have been unwell for over three years. Longer if you count my stroke, migraine...

Bonnie39

•10 years ago

9 Replies

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Do I have lupus?

Hi to all this is my post any feedback would be much appreciated. i am 27 year old staff nurse on a very busy surgical ward. For the past year I have had foot...

Hi to all this is my post any feedback would be much appreciated. i am 27 year o...

debs87

•10 years ago

9 Replies

Ear problems

Hi does any one suffer from reoccurring ear problems, Over last few months I have suffered with pain in ear canal and it swelling... I have been under...

Hi does any one suffer from reoccurring ear problems, Over last few months I ha...

cazzm

•10 years ago

14 Replies

I have not been on here in a long time I hope all are well I am Krisdy from the USA. I feel like I have alot of anger now, Is this Lupus????

I think i going crazy

krisdy

•10 years ago

6 Replies

Does anyone suffer from an eye problem called Blepharitis?

I have red sore eyelids which I thought were sjogrens related but are not. They are - yet another - condition to add to the last. Any advice re treatment or...

I have red sore eyelids which I thought were sjogrens related but are not. They...

Sjink

•10 years ago

28 Replies

feeling breathless

hello everyone, over the past year or more ive become more and more breathless. even simple tasks as unloading washing machine, walking down to ginnie hutch...

hello everyone, over the past year or more ive become more and more breathless....

caninecrazy

•10 years ago

16 Replies

How do you categorise Lupus?

Going through OH assessments as I am off long term sick and they seem to want to label my Lupus as mild/moderate/severe. My GP has said it is severe. As far as...

Going through OH assessments as I am off long term sick and they seem to want to...

DaleDiva

•10 years ago

10 Replies

Cambridgeshire Lupus Group AGM and Information Afternoon

Cambridgeshire Lupus Group are having their AGM combined with an Information Afternoon on Saturday 12th April 2014 at 2.00pm at the Cambridge Professional...

Cambridgeshire Lupus Group are having their AGM combined with an Information Aft...

Paul_Howard

Partner•10 years ago

Be the first to reply

has anybody been on chloroquine in past years, if so how long did you take it for and are there any side effects.

I was prescribed it for 20+ yrs yet have not come across anyone else that has ever had it, it's not the same as hydroxychloroquine. am keen to hear from anyone...

I was prescribed it for 20+ yrs yet have not come across anyone else that has ev...

maalidog

•10 years ago

3 Replies

Thank you.......

I just want to thank all of you that have taken the time to reply to my post regarding Methotrexate. All of your comments have really helped in more ways then...

I just want to thank all of you that have taken the time to reply to my post reg...

Jo883

•10 years ago

8 Replies

Applying for a blue badge

As anyone applied for blue badge ? I have SLE , lupus nephritis & Hughes syndrome ... I live up lane & am unable to park outside my house ...at times I can be...

As anyone applied for blue badge ? I have SLE , lupus nephritis & Hughes syndrom...

Ischky

•10 years ago

6 Replies

Can my benefit be stopped?

Hi, iv'e been on ESA work related for around three years now due to a condition known as Avascular necrosis. I have had one hip replaced and am now awaiting...

Hi, iv'e been on ESA work related for around three years now due to a condition ...

Bribfc65

•10 years ago

3 Replies

Unexplained Bruising...

I have always bruised easily. But lately I have had a huge number of odd and unexplained bruises...on the inside of my legs...my abdomen...my breasts... I...

I have always bruised easily. But lately I have had a huge number of odd and une...

jakenney

•10 years ago

19 Replies

Chest pressure

Anyone have chest pressure, discomfort. I get this occasionally, and feel like I am going to have a heart attack. Broke out into a sweat too...feeling better...

Anyone have chest pressure, discomfort. I get this occasionally, and feel like I...

Natura

•10 years ago

17 Replies

Has anybody heard of Morphea

I have been diagnosed with an autoimmune disease called Morphea. I was given a prescription called Metrotrexate. This disease has affected my skin. I get red...

I have been diagnosed with an autoimmune disease called Morphea. I was given a ...

chita53

•10 years ago

3 Replies

I am having problems with my stomach I tried Gaviscon Health Salts and Omeprazole, but no help.

Acid, some burning, mild pain, lots of gurgling, and felling of hunger soon after I have eaten,

Acid, some burning, mild pain, lots of gurgling, and felling of hunger soon afte...

Kedaco

•10 years ago

4 Replies

For about a week now I am having a lot of pain in and around my right shoulder, under my shoulder blade. Can't put pressure on it

I messed up the rotator cuff about 6 years ago and it has never been repaired. I can't hardly put enough strength on it to use the lever on my recliner. The...

I messed up the rotator cuff about 6 years ago and it has never been repaired. ...

skmcghee

•10 years ago

2 Replies

Methotrexate......

Just wondering how many of you have had success on methotrexate? Both positive and negative. I have just been offered this drug, but atm don't feel like I have...

Just wondering how many of you have had success on methotrexate? Both positive a...

Jo883

•10 years ago

44 Replies

Officially diagnosed 3 days ago. Feeling pretty numb.

I have had a plethora of symptoms for almost a year. After my Dad died I tumbled down hill, although looking back I havent been myself for a good few years. I...

I have had a plethora of symptoms for almost a year. After my Dad died I tumbled...

Queenie70

•10 years ago

13 Replies

Ever tried explaining your aches, pains, sickness & fatigue to non-lupies? Have a look at his website page, it may help?

http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/ I found it helped at work when someone's reply was "we all get......

http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon...

toots04

•10 years ago

6 Replies

Does any of this sound familiar or have I just got a virus? I feel so ill.

Hi all As you will see from previous posts I am undiagnosed but on a mission to find out what is going on with me. For the last two weeks I have felt great....

Hi all As you will see from previous posts I am undiagnosed but on a mission to...

melodypond

•10 years ago

6 Replies

Ive nobody else to turn to...

I think I just got sacked. Almost 8wks ago I fell down the stairs at home & fractured my spine. My mums v sick in Christie hospital riddled with lymphoma, my...

I think I just got sacked. Almost 8wks ago I fell down the stairs at home & fra...

Nanuuk

•10 years ago

9 Replies

Boy, do I need a new GP . . .

Morning, all. Anyone know a good GP in north-east London? Some of you may remember my pain when I discovered a couple of weeks ago that my (excellent) GP had...

Morning, all. Anyone know a good GP in north-east London? Some of you may rememb...

Carcrashgal

•10 years ago

13 Replies

I have dry eyes, dry mouth and I have a purplish rash that is spreading Fast. Does anyone else have this rash?

I have not had a definitive diagnosis to date.

knitter13

•10 years ago

3 Replies

Where do I go from here?

I have SLE, Sjorgren's and Crohn's. I have had worsening joint pain and I had been to the doctors and been given zydol 50 mgs. 2 x 3 times a day and...

I have SLE, Sjorgren's and Crohn's. I have had worsening joint pain and I had be...

Mitziemoo

•10 years ago

7 Replies

Hi I had an ultrasound this morning on gall bladder, kidneys, bladder etc. A problem with a blood vessel to my liver was picked up

A few hours after the ultrasound a doctor from my practice rang for my permission for an MRI. I am taking Hydroxi to treat sle and sjrogrens. I am very...

A few hours after the ultrasound a doctor from my practice rang for my permissio...

flossy1

•10 years ago

4 Replies

Potassium & Bananas (and other high potassium foods)

Being on azathaprine i have fortnightly bloods. Im called by my GP to get potassium from the dispensary. Im going to see another GP about other related SLE...

Being on azathaprine i have fortnightly bloods. Im called by my GP to get potas...

kazp

•10 years ago

10 Replies

How do I know if I have photosensitivity?

My skin has been absolutely awful lately, I have a pickly angry rash all over my face and the rheumatologist has prescribed Tacrolimus (spelling?) which he...

My skin has been absolutely awful lately, I have a pickly angry rash all over my...

Hidden

•10 years ago

25 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2014

I have recently been diagnosed with SLE and am allergic to UVA and use factor 50+ sunscreen but wondered if it is necessary to buy a hat

Anyone not feeling like eating anymore?

So, how did people here get their diagnosis?

Do I have lupus?

Ear problems

I have not been on here in a long time I hope all are well I am Krisdy from the USA. I feel like I have alot of anger now, Is this Lupus????

Does anyone suffer from an eye problem called Blepharitis?

feeling breathless

How do you categorise Lupus?

Cambridgeshire Lupus Group AGM and Information Afternoon

has anybody been on chloroquine in past years, if so how long did you take it for and are there any side effects.

Thank you.......

Applying for a blue badge

Can my benefit be stopped?

Unexplained Bruising...

Chest pressure

Has anybody heard of Morphea

I am having problems with my stomach I tried Gaviscon Health Salts and Omeprazole, but no help.

For about a week now I am having a lot of pain in and around my right shoulder, under my shoulder blade. Can't put pressure on it

Methotrexate......

Officially diagnosed 3 days ago. Feeling pretty numb.

Ever tried explaining your aches, pains, sickness & fatigue to non-lupies? Have a look at his website page, it may help?

Does any of this sound familiar or have I just got a virus? I feel so ill.

Ive nobody else to turn to...

Boy, do I need a new GP . . .

I have dry eyes, dry mouth and I have a purplish rash that is spreading Fast. Does anyone else have this rash?

Where do I go from here?

Hi I had an ultrasound this morning on gall bladder, kidneys, bladder etc. A problem with a blood vessel to my liver was picked up

Potassium & Bananas (and other high potassium foods)

How do I know if I have photosensitivity?

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