I have SLE, Sjorgren's and Crohn's. I have had worsening joint pain and I had been to the doctors and been given zydol 50 mgs. 2 x 3 times a day and Paracetamol 500 mgs. Since October 2013, I have had severe neck, back and shoulder pain, together with swelling and stiffening, eventually I managed to get an appointment for an X-ray after discussing it with another doctor. The results of the x-ray showed that the disc bones in my back are now crumbling, however, when I ask the locum doctor what the results of my neck showed, she told me that no X-ray of my neck had been requested by the doctor I had seen. I explained why I had asked to have an x-ray and she pulled a surprised face, when I told her why I had requested it. She told me that she would send me for physiotherapy on my back and discuss it with my own doctor.
My husband had an appointment with our own Dr. as he has "mild to moderate" Alzheimers and he wanted to do another assessment, so I requested a double appointment. I asked my own Dr. if I could have an x-ray on both of my hands and one on my neck due to the swelling, and severe pain. He replied that I had already had an x-ray on my neck. So I told him what the locum doctor had told me. He then told me that my neck was due to my age, I am 62 in May this year, and of course my underlining condition as an after thought, and he would not send me for more x-rays and that I was being sent for physio but he would have a word with the lady doctor just to check she had sent the request form.
He then turned his attention to my husband, who is in complete denial of his condition and told me he wanted him to visit another surgery for blood tests, the day after tomorrow and when these had been done to bring him one evening to another surgery for the results, assessment and testing. My husband works as a self-employed barber, but obviously cannot drive due to his
I am not a "moaner" of my condition, I try extremely hard to get on with it and not bother people, as I am a very private person, but I feel let down by him and when I talk about it I just cry, which is very unlike me. I just keep thinking, if my own doctor is not interested where do you go?
Thanks for listening it means a lot, but I just don't know what to do next.
Lots of love,