has anybody been on chloroquine in past years, if so how long did you take it for and are there any side effects.

[maalidog]

I was prescribed it for 20+ yrs yet have not come across anyone else that has ever had it, it's not the same as hydroxychloroquine. am keen to hear from anyone that took it in past years and in particular how their health is now after having taken it. I have sle, diagnosed early 20s, am now 52.

[hazelHollingsworth]

Hi, I have been on Hydroxychloroquine for 27 years, I have got first stage Glaucoma, but I have 6 month check ups at the options and it has never progressed. I was told before I took it I would need the eye tests and do not have to pay. Apart from the 'normal' lupus lumps, bumps ache's and pains, The only other Major problem I have had and still got it sever spinal stenosis, but that is nothing to do with the medication or if it is no one has said. I am now 67 and today I feel it!! I am young at heart and do try to swim 5 days a week, depending on whether 'the body' is willing. If you do Not have regular eye tests I suggest you Do. Good Luck.xx

[HermioneG]

Hi

I took it along with Mepacrine for a number of years with no sign of damage but St Thomas London won't prescribe it because they regard the risk of eye damage as too great. I had my eyes tested twice a year and more since the dose is cumulative in the USA where I was living. As far as I know it is very rarely prescribed if ever in the UK these days.

H

[chrisj]

Not used chloroquine.....whats the difference in that and the hydroxy one??? I've been taking plaquenil/hydroxychloroquine since 2005 and not noticed any significant problems.

The main thing that woried me for a while was the rare side effect on the retina but my optician assured me it was extremely rare. I have my eyes checked every year and so far so good. Plaquenil works for me, eases the fatigue and general joint pain...