I have been unwell for over three years. Longer if you count my stroke, migraines, joint problems etc.
9 years ago I had a strokr. 6 years ago my obstetrician diagmosed hypothyroidism. But for the last 3 years I've been at GPs weekly because I've just felt so awful. Supplements have been prescribed for anaemia, low calcium, low b12, low vit d etc etc. Last year when investigating TMJ a brain MRI was done confirming stroke and several TIAs. Bloodwork ordered on back of that confirmed APS and equivocal sle. So I looked sle up and realised all the complaints I have made are all lupus related.
In fact I have 8 of the 11 ARC list. And yet I cannot get treatment for sle. Rheumy says its possibly fibromialgia and APS but this doesnt make sense. She also confirmed I have osteoarthritis in my knees (but no inflammatory ra evidence in blood).
I am desperate now. Beyond exhausted and knocked out from any activity for days. I am on warfarin for aps, but need the rest taken care of. I also have, according to thrombotologist and GP probable lupus nephritis. Are they really going to insist on +ve bloods for sle or can I push for plaquinel which could also help aps too.
Sorry for rant. I have been ferling awful for so long, my body is falling apart, and I am fed up. Advice please.