Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2014

Hello, I do not have Lupus but have autoimmune hives as well as 3 other autoimmune diseases. I have uffered for 3 years with hiving that is

@200 but after a week of incredible tireness and a somewhat depressed mood quit. I am now trying it again and its been a little over a week and I'm exhausted...

@200 but after a week of incredible tireness and a somewhat depressed mood quit....

hivey

•10 years ago

1 Reply

Sickness at the weekend?

My mum has Lupus and has taken a cocktail of medication for years now. For the last 6 months she has been violently vomitting at the weekends and the weekends...

My mum has Lupus and has taken a cocktail of medication for years now. For the l...

bethhunter1994

•10 years ago

4 Replies

Anyone been diagnosed with polymycotis

I realise iv asked this question before but because its rare i didnt have any replies.I thought at different times someone with this condition might see it. I...

I realise iv asked this question before but because its rare i didnt have any re...

yorkshiregirl44

•10 years ago

4 Replies

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Does anybody also have food intolerance with lupus

ebinnie49

•10 years ago

9 Replies

I've finally found a great use for my constantly icy cold fingers!

I was once told that if we have a sense of the absurd we can survive anything. During my most recent really difficult flare (am at the tail end thank...

I was once told that if we have a sense of the absurd we can survive anything. ...

Tinae12

•10 years ago

6 Replies

Do I have Lupus?

I've been experiencing symptoms for over 8 weeks now and am wondering whether I have Lupus. My symptoms: My foot going blue and having a numbness sensation...

I've been experiencing symptoms for over 8 weeks now and am wondering whether I ...

Char458

•10 years ago

14 Replies

Hi, just wondering if anyone has cerebral vasculitis?

I saw my rheumy today who diagnosed me with sjgorhens in addition to my sle, raynauds, crps and possible cerebral vasculitis. My memory has progressively been...

I saw my rheumy today who diagnosed me with sjgorhens in addition to my sle, ray...

sezzie

•10 years ago

5 Replies

Is this lupus?

Over several years I've been experiencing symptoms that put together might be pointing at lupus. I have several joints in my body affected by arthritis...

Over several years I've been experiencing symptoms that put together might be po...

Whitecat

•10 years ago

4 Replies

Dose anyone know if you can get Employment Support Allowance if you have Fibromyalgia. I had my Incapacity benefit stopped my appeal is soon

My condition is worse than when I was medically retired from my last job, I sent in 2 medical notes from my Doctor for two months because I was told if I done...

My condition is worse than when I was medically retired from my last job, I sent...

Kedaco

•10 years ago

7 Replies

lupus?

I was thinking does anyone have "deformed " joints?when I hold my arms out straight my elbows are "twisted"right round (sorry cant describe it any other...

I was thinking does anyone have "deformed " joints?when I hold my arms out strai...

anbuma

•10 years ago

8 Replies

Lupus nephritis?

Low GFR, and visible and then microscopic blood in urine. Cystoscopy and CT scan clear. Thrombotologist thinks may be a microscopic breakdown of kidneys caused...

Low GFR, and visible and then microscopic blood in urine. Cystoscopy and CT scan...

Bonnie39

•10 years ago

5 Replies

Colloidal silica

A big thank you to all, especially those who have discussed Quinoric and colloidal silica before. I have had a lot of auto-immune symptoms (Check my activity...

A big thank you to all, especially those who have discussed Quinoric and colloid...

chlorophyle

•10 years ago

2 Replies

Does anyone have red rashy spots that severely scar ? ? Don't hurt, sting at first almost blister like ?

mummajo

•10 years ago

8 Replies

good news (technically)

had some great news and I wanted to share with everyone, well its not great really but fellow lupies will understand why it is! After nearly 2 years of being...

had some great news and I wanted to share with everyone, well its not great real...

Hidden

•10 years ago

9 Replies

how to get diagnosis when bloods are clear but have many symptoms including marsk, mouth ulcers fatige, joint pain im really struggling now?

mummajo

•10 years ago

14 Replies

Any advice for very sore, ulcerated skin on fingers??

tiredmumofthree

•10 years ago

6 Replies

Anyone been diagnosed with polymycotis?

yorkshiregirl44

•10 years ago

5 Replies

Could I have Lupus?

I have had joint pain in my knees since I was 10. Now the pain is in my hips/knees, elbows, and sometimes toes and fingers. I have bad headaches and dizziness....

I have had joint pain in my knees since I was 10. Now the pain is in my hips/kne...

deerae777

•10 years ago

7 Replies

Share your studying stories for our blog

We'll be continuing to share people's lupus stories for March and April. We'd now like for people to share their stories about studying at...

We'll be continuing to share people's lupus stories for March and April. We'd no...

Paul_Howard

Partner•10 years ago

Be the first to reply

I have chronic migraine,lupus,hughes syndrome,raynauds,sjogrens etc,and I have just been diagnosed witn occipitial neuralgia

I am using lignocaine patches.Does anyone know, do you use these patches long term, or has anyone had an operation to sort out the compressed nerve? My GP is...

I am using lignocaine patches.Does anyone know, do you use these patches long te...

charlie007

•10 years ago

10 Replies

STRANGE LUMP?

Hi all, last monday I found a starange lump under my arm more towards the edge of my arm pitt on the outward edge, I have Lupus, serisitis,hymermobility, etc....

Hi all, last monday I found a starange lump under my arm more towards the edge o...

willowwag

•10 years ago

4 Replies

my ANA tests came back i don't even know what it means, im just confused on the test being fine but my body feeling like crap

my ANA tests came back i dont even know what it means, im just sick of the test being fine but my body feeling like crap My ana Tests came back and im...

my ANA tests came back i dont even know what it means, im just sick of the test ...

kkgirl

•10 years ago

4 Replies

Finally got to the bottom of my stroke like episodes. Just goes to show doctors really should listen to their patients more.

Over the last year or so I have had four funny episodes,three resulting me being admitted into hospital.It makes it seem like I'm having a stroke,my speech...

Over the last year or so I have had four funny episodes,three resulting me being...

mum-two

•10 years ago

10 Replies

Living With Lupus But Still Blogging & Fabulous

Hey guys I was pretty emotional today so I decided to write a blog post about my lupus son my Blog It was kind of a big deal for me as many if my friends and...

Hey guys I was pretty emotional today so I decided to write a blog post about m...

wotshernameagain

•10 years ago

2 Replies

I have recently decided to stop taking my statins. I have previously been having pain in my joints and also my back.

Since i have stopped my statins, i have felt much better. My leg is no longer heavy. My muscles are no longer tight. My head feels a lot more clearer. I can...

Since i have stopped my statins, i have felt much better. My leg is no longer he...

sandwiches

•10 years ago

5 Replies

An update to share with you ... and some questions to ask about St Thomas' Hospital

Hi all. I saw my rheumatologist for my 6 monthly check this week. I am a little upset with how things have been going lately with my health. I have coeliac...

Hi all. I saw my rheumatologist for my 6 monthly check this week. I am a little...

bestbuddy

•10 years ago

14 Replies

New medication less fatigue more problems?

New medication less fatigue more problems? I feel like all the Doctors’ appointments, Rheumatologist appointments and blood tests are paying off. I am...

New medication less fatigue more problems? I feel like all the Doctors’ appoint...

wotshernameagain

•10 years ago

7 Replies

Explain what Costochontritis- Pericarditis is

Hidden

•10 years ago

7 Replies

Is there a list of specialist SLE doctors?

Hi,my Mum has SLE,she's been diagnosed for 18 yrs now. She's 78. Ive never really been happy with her Rheumy,and since i was diagnosed with systemic sclerosis...

Hi,my Mum has SLE,she's been diagnosed for 18 yrs now. She's 78. Ive never reall...

san61

•10 years ago

7 Replies

I have just learned that I have Mytosis to add to the shopping list of diagnoses that i currently have. My rhumey tried to explain it to me

But it kind of when over my head do i did some research well.. I understand that Mytosis causes weakening of the muscles but understand If it is a permanent...

But it kind of when over my head do i did some research well.. I understand tha...

wotshernameagain

•10 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2014

Hello, I do not have Lupus but have autoimmune hives as well as 3 other autoimmune diseases. I have uffered for 3 years with hiving that is

Sickness at the weekend?

Anyone been diagnosed with polymycotis

Does anybody also have food intolerance with lupus

I've finally found a great use for my constantly icy cold fingers!

Do I have Lupus?

Hi, just wondering if anyone has cerebral vasculitis?

Is this lupus?

Dose anyone know if you can get Employment Support Allowance if you have Fibromyalgia. I had my Incapacity benefit stopped my appeal is soon

lupus?

Lupus nephritis?

Colloidal silica

Does anyone have red rashy spots that severely scar ? ? Don't hurt, sting at first almost blister like ?

good news (technically)

how to get diagnosis when bloods are clear but have many symptoms including marsk, mouth ulcers fatige, joint pain im really struggling now?

Any advice for very sore, ulcerated skin on fingers??

Anyone been diagnosed with polymycotis?

Could I have Lupus?

Share your studying stories for our blog

I have chronic migraine,lupus,hughes syndrome,raynauds,sjogrens etc,and I have just been diagnosed witn occipitial neuralgia

STRANGE LUMP?

my ANA tests came back i don't even know what it means, im just confused on the test being fine but my body feeling like crap

Finally got to the bottom of my stroke like episodes. Just goes to show doctors really should listen to their patients more.

Living With Lupus But Still Blogging & Fabulous

I have recently decided to stop taking my statins. I have previously been having pain in my joints and also my back.

An update to share with you ... and some questions to ask about St Thomas' Hospital

New medication less fatigue more problems?

Explain what Costochontritis- Pericarditis is

Is there a list of specialist SLE doctors?

I have just learned that I have Mytosis to add to the shopping list of diagnoses that i currently have. My rhumey tried to explain it to me

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