I have chronic migraine,lupus,hughes syndrome,raynauds,sjogrens etc,and I have just been diagnosed witn occipitial neuralgia

[charlie007]

I am using lignocaine patches.Does anyone know, do you use these patches long term, or has anyone had an operation to sort out the compressed nerve? My GP is away at the moment and would just like advise!

[misty14]

Hi Mary oSullivan

I use the Lidocaine patches, have done for a year now. I ought to ask about long- term use but don't get side effects. Your problem sounds a very painful one! Hope I've helped?x

[charlie007 in reply to misty14]

Hi misty14

Thanks for your reply,do you have any problems with the patches staying on?I

[misty14 in reply to charlie007]

Hi MaryOSullivan

I can have problems with the patches staying on but realised you can replace them within the 12 hour slot you use them in. I'm sorry your compressed nerve is in your neck, must cause migraines! and be excruciatingly painful! Hope that helps.x

[farmerfester]

Hi Mary O'Sullivan

Where is your compressed nerve I have nerve damage and compression in my spine take nerve blocker witch helps a bit going to pain clinic next month reumi tells me patches are one off the options

[charlie007 in reply to farmerfester]

Hi farmerfester

My compressed nerve is in my neck,at times the pain can be so severe that I begin to think it must be something more serious,but I have been reassured it's not,this has taken years to diagnose.I have had the nerve block also and it has helped.I feel this triggers my migraine and vomiting.Thanks for your reply

[Hidden]

Hi Mary, just googled occipitial neuralgia. Sorry I can't advise on patch, but I was wondering if you were first told that vasculitus was the cause of your eye pain. I have this eye pain at the moment, and I do suffer with it regularly. It is very painful at the moment as it's now affecting my teeth. Years ago I went to A&E eye hospital, but they only diagnosed, inflammation of the blood vessels.( it was a Dermo who said vasculitus). I usually up the steroids when this strikes, but am wondering if I can do more. I do have eye drops as I have sjorgrens, but as you know, this pain is so debilitating. I have arthritis in my neck, but cannot say that I have pain there at the same time as my eyes. My eyesight is awful now and I wear glasses that react to bright light. I thought this was my cure as I've not had an attack since October, but it's back with a vengeance. Just wondered if you can advise. Take care.

[Purpletop in reply to Hidden]

If your eye pain responds to steroids then it is more likely to be vasculitis/autoimmune inflammation. Occipital neuralgia doesn't tend to be responsive to much.

[charlie007 in reply to Hidden]

Hi 6161,I was diagosed with vasculitis years ago,its so complex,but I would agree with purpletop.I just wish ed for a quick fix ,but I should know by now it does not exist.I hope you get sorted too!

[Hidden in reply to charlie007]

Thanks for getting back to me, I wish you well x

[Hidden]

Thanks Ptop, didn't want another ailment on my list. X