Anyone been diagnosed with polymycotis? - LUPUS UK

LUPUS UK

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Anyone been diagnosed with polymycotis?

yorkshiregirl44 profile image
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yorkshiregirl44
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Hi there, you asked this Q the other day. I saw you had no replies and wondered do you mean polymyositis??? Not sure I spelt that correctly. Very unusual not to get replies on this site, so check again. Pleases accept my apologies in advance if you have posted it correctly.

yorkshiregirl44 profile image
yorkshiregirl44 in reply to

I think its the right question. When i looked at the condition on google it said helathlocked under lupus was the area for support.Maybe because its an inflamatory condition.

Sorry once more, I googled it just a while ago and it said, Yorkshire girl etc..... Last time I looked when you first posted and it only said the other term. If someone has it I'm sure they would share, as we all have inflammatory probs here. So I'll shut up and hope that someone comes along soon. Take care...

yorkshiregirl44 profile image
yorkshiregirl44 in reply to

Iv always been under Yorkshire girl, i wonder what the other one was

mstr profile image
mstr

Hi.....I have UCTD initially with lupus/polymyositis symptoms. It is said to be more lupus like now but I need to ask about this next rheumy visit (there is never enough time to get the most pressing symptoms out). Initially I had difficulty getting out of a chair (still do am stiff very quickly after sitting just 10 mins), going upstairs difficult (improved since on dmard's), brushing hair, raising arms up etc etc. It is basically muscle weakness. I normally swim to try and help these symptoms and keep strength there and I think it is helpful to do exercise. Poly just means many so there is weakness in more than one muscle. A blood test can tell if you have this....though I have ana positive I did not test positive to the necessary blood test. I think though that a lot with lupus seem to have joint/muscle issues.

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