Hi,my Mum has SLE,she's been diagnosed for 18 yrs now. She's 78. Ive never really been happy with her Rheumy,and since i was diagnosed with systemic sclerosis 2 yrs ago,ive realised there could be a whole lot she's missing out on to help her feel better. She is of the generation where the doc is always right,never asks questions,doesnt know what they test her blood for etc. She just accepts it.
If there was a specialist near by I would try get her referred. Many thanks. (I feel i may be referring to this forum quite a lot!)