Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,554 posts

All posts for November 2013

What will happen at my first rheumatology appointment?

My GP has refererred me to a rheumatologist because I developed lupus type symptoms when I was on a drug to treat endometriosis type symptoms. Since I have...

My GP has refererred me to a rheumatologist because I developed lupus type sympt...

Katt

•11 years ago

3 Replies

Vertigo and feeling weak/faint!

Hi I have just had an op on my hand...trapezoitomy and carpal tunnel...and post op developed the severe chest pains had at beginning of lupus journey...got...

Hi I have just had an op on my hand...trapezoitomy and carpal tunnel...and post ...

Luppykate

•11 years ago

4 Replies

Dr Hughes diagnosed me with Lupus in 93 but GP & St Thomas now say it's scleroderma because of the calcium lumps.

I am confused because St Thomas explained that scleroderma is to do with the skin but I still feel really poorly, like I have a bad dose of the flu 24/7,...

I am confused because St Thomas explained that scleroderma is to do with the ski...

florence1884

•11 years ago

1 Reply

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Hi all I have lost my esa appeal should I take it to the further appeal or just re apply.

I have Doctors and Consultants letters to support me but still lost.

gazzasoens

•11 years ago

18 Replies

When NOT in a flare, do you still have residual symptoms - UPDATE

You may recall that a few days ago I asked about residual symptoms and whether you still have them while you are on medication. Many of you have responded...

You may recall that a few days ago I asked about residual symptoms and whether y...

Purpletop

•11 years ago

9 Replies

Upper back and chest pain.

I've not been diagnosed with lupus,, but got all the classic symptoms, plus more, I've had sclritas in my eye,,, and now I've had chest pain and I'm getting...

I've not been diagnosed with lupus,, but got all the classic symptoms, plus more...

Mouse61

•11 years ago

10 Replies

How to complain to DWP about PIP?

Hi all I was wondering if anyone knew how i could complain to the DWP about PIP? And would it affect their decision?? Short version of problem. I started the...

Hi all I was wondering if anyone knew how i could complain to the DWP about PIP...

esky

•11 years ago

8 Replies

Hi.are both typea if lupus linked? Or are they classed as 2 separate diseases ?

dglet

•11 years ago

5 Replies

cold

I get a cold about every two weeks does anyone else suffer with this ?

steph1

•11 years ago

7 Replies

Strange question but can anyone recommend some food prep disposable gloves that would keep irritation to a min ta!

Lozzanne

•11 years ago

2 Replies

Are more cases of Lupus being found in older women now because it is starting later in life or was just missed for a long time?

Purpletop, had such a good question yesterday about residual symptoms, one I had been wanting to ask. So I will ask another one. Lupus is usually considered...

Purpletop, had such a good question yesterday about residual symptoms, one I had...

Chapter

•11 years ago

27 Replies

Should I insist on a referral to investigate sle?

Will try to cut this short. My son was born with what the health visitor described as "baby acne" (apparently common amongst boys). It became infected and...

Will try to cut this short. My son was born with what the health visitor describ...

meeche1978

•11 years ago

9 Replies

I have a burning rash come up up on my cheeks and across my Nose . Would chocolate cause this?. As I ate some last time I had it.

Spotter22

•11 years ago

14 Replies

Unusual shrinking/squeezing feeling in the testes

I was diagnosed with DLE 4 years ago, it's caused scarring on my cheeks and nose and behind and inside my ears. I was biopsied and told I didn't have SLE, just...

I was diagnosed with DLE 4 years ago, it's caused scarring on my cheeks and nose...

dleface

•11 years ago

5 Replies

News & Views Magazine - Winter 2013 - OUT NOW

Our brilliant helpers were back in the office yesterday and we managed to get all the magazines stuffed into the envelopes in record time! They were posted out...

Our brilliant helpers were back in the office yesterday and we managed to get al...

Paul_Howard

Partner•11 years ago

6 Replies

When NOT in a flare, do you still have residual symptoms?

I'm due to see my rheumatologist on Friday to asses how I'm doing. I've been on mycophenolate (CellCept) since June and although symptoms have improved a lot...

I'm due to see my rheumatologist on Friday to asses how I'm doing. I've been on...

Purpletop

•11 years ago

38 Replies

Side effects

I've been on Mycophenolate for about 2 weeks now. I take 1 x 500mg in the morning and 1 in the evening both with food. I was due to step up the dose to 2 x...

I've been on Mycophenolate for about 2 weeks now. I take 1 x 500mg in the mornin...

tcogb

•11 years ago

Be the first to reply

Hi all, just need some info , got blood test results this week , and it says my ESR is slightly high... What's ESR?????

Also have slightly low white count???. P.s yes I have Lupus , just wondered what this means.... P.s.s not over worried as feel really good at the moment,...

Also have slightly low white count???. P.s yes I have Lupus , just wondered what...

Rusty26

•11 years ago

6 Replies

No question, just thanks...

....to all that have read my many questions and given great advice. I am aware I've posted lots of questions which have answered many of the thoughts running...

....to all that have read my many questions and given great advice. I am aware...

jennawings

•11 years ago

7 Replies

Hi, is it true that lupus hides form blood test sometimes?

jesua975

•11 years ago

7 Replies

Has anyone been under Dr Teh at royal Blackburn?

Mouse61

•11 years ago

2 Replies

Just had flue jab

Hi all, had the flue jab 4 days ago and apart from abit of a sore arm, and a little bit raised its fine....why im posting is that while is was in the doctors...

Hi all, had the flue jab 4 days ago and apart from abit of a sore arm, and a lit...

willowwag

•11 years ago

3 Replies

My partner has lupus but trying to conceive

My partner was diagnosed.with lupus in 2009 and has being in hospital twice once with brain damage.and the.second time with kidney and brain damage his skin...

My partner was diagnosed.with lupus in 2009 and has being in hospital twice once...

tryingtoconceive2013

•11 years ago

11 Replies

Back on MMF 500 mg

After my 8th relapse of Wegeners, my Doctor put me on Ristova again for 6th time, 500 mg, four infusions. And with that he started MMF 500, initially twice...

After my 8th relapse of Wegeners, my Doctor put me on Ristova again for 6th time...

amita_valmiki

•11 years ago

2 Replies

nightmares

hello its me again, does anyone else have frequent nightmares please? im on 200 plaquenil daily and ibrophen for pain. I work part time and rest to recharge...

hello its me again, does anyone else have frequent nightmares please? im on 200...

caninecrazy

•11 years ago

8 Replies

What to do when lupus interferes with working?

Recently diagnosed with lupus and determined to keep on working full time as a secondary school teacher primarily because I cannot afford not to. I have been...

Recently diagnosed with lupus and determined to keep on working full time as a s...

jennawings

•11 years ago

15 Replies

Anyone know the legal work related ins and outs around health, Lupus, depression, etc?

My employer is using my health as a reason not to allow me to increase my days/hours at work. They say it is because they are concerned about my well being. It...

My employer is using my health as a reason not to allow me to increase my days/h...

Hidden

•11 years ago

3 Replies

What causes the capillary to leak?

Hi guys.just wanted to share some info with you.I was at the eye clinic today and saw my eye scan for the first time and had it actually explained to me. Last...

Hi guys.just wanted to share some info with you.I was at the eye clinic today an...

Hidden

•11 years ago

Be the first to reply

A positive ANA

Hello - this is my first post here. I was diagnosed with Hughes Syndrome in April. The blood tests also indicated a positive ANA. My Consultant wanted me to be...

Hello - this is my first post here. I was diagnosed with Hughes Syndrome in Apri...

stillwaiting

•11 years ago

4 Replies

Flare causing a period

Hi guys, have any of you found that a flare can cause an early period? i only came off 10 days ago then i had a huge flare up and randomly started again. it...

Hi guys, have any of you found that a flare can cause an early period? i only ca...

Hidden

•11 years ago

18 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2013

What will happen at my first rheumatology appointment?

Vertigo and feeling weak/faint!

Dr Hughes diagnosed me with Lupus in 93 but GP & St Thomas now say it's scleroderma because of the calcium lumps.

Hi all I have lost my esa appeal should I take it to the further appeal or just re apply.

When NOT in a flare, do you still have residual symptoms - UPDATE

Upper back and chest pain.

How to complain to DWP about PIP?

Hi.are both typea if lupus linked? Or are they classed as 2 separate diseases ?

cold

Strange question but can anyone recommend some food prep disposable gloves that would keep irritation to a min ta!

Are more cases of Lupus being found in older women now because it is starting later in life or was just missed for a long time?

Should I insist on a referral to investigate sle?

I have a burning rash come up up on my cheeks and across my Nose . Would chocolate cause this?. As I ate some last time I had it.

Unusual shrinking/squeezing feeling in the testes

News & Views Magazine - Winter 2013 - OUT NOW

When NOT in a flare, do you still have residual symptoms?

Side effects

Hi all, just need some info , got blood test results this week , and it says my ESR is slightly high... What's ESR?????

No question, just thanks...

Hi, is it true that lupus hides form blood test sometimes?

Has anyone been under Dr Teh at royal Blackburn?

Just had flue jab

My partner has lupus but trying to conceive

Back on MMF 500 mg

nightmares

What to do when lupus interferes with working?

Anyone know the legal work related ins and outs around health, Lupus, depression, etc?

What causes the capillary to leak?

A positive ANA

Flare causing a period

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