Will try to cut this short. My son was born with what the health visitor described as "baby acne" (apparently common amongst boys). It became infected and needed antibiotic ointment. He was always sicky. Had a huge inflamed belly button which eventually went down. At 1yr old he developed a rash on one cheek that spread to the other cheek and the chemist said it wad slapped cheek syndrome however it did spread slightly over his nose too. A while after that he developed leg pains that would come and go and were mostly at night so I left it and just massaged him regularly assuming it was growing pains. At age 3 his health went downhill. He developed quite serious asthma, had regular steroids, allergies, eczema and was always ill and his leg pains seemed worse. I noticed his foot turned in and he appeared lazy. He had a swollen lymphnode which didn't go away so it was surgically removed and analysed and blood tests which showed low iron levels, low c4 and a slightly positive ANA.
The doc said this was typical of lupus and tried to refer him to a reumatologist. But the referral was turned down due to not enough evidence to suggest lupus!
Since the iron supplements he has improved but still gets leg pains and the orthotics have confirmed he stands with pes planus. (Internal hip rotation and leg, creating an in-toeing gait and weakness in one leg). I have had fatigue, and breathing problems all my life and now have Raynauds Syndrome but clear blood tests. His new doctor said his latest blood tests were nothing to worry about and that she is not concerned so I'm guessing he is now going to be discharged but I am concerned that whatever caused his iron deficiancy is still there! Should I insist on a referral to a specialist?