I'm due to see my rheumatologist on Friday to asses how I'm doing. I've been on mycophenolate (CellCept) since June and although symptoms have improved a lot in the main, I still have daily tiredness of various degrees (ranging from slightly sleepy to exhausted), muscle and joint pain here and there (although not consistently), hair loss of various degrees (from handfuls to few hairs on the comb) - just not as bad as in a flare. Blood tests are all within range (other than raised liver function tests but I very rarely have those normal).
So I don't know what to say to the rheumatologist if asked whether I think MMF is working. To my mind, it is working to some extent but not fully, given that I have few residual symptoms still.
From you're experience, when you are NOT in a flare, do you have a symptom free life?
I'm thinking that maybe I am too optimistic about what the meds could achieve.