I was diagnosed with DLE 4 years ago, it's caused scarring on my cheeks and nose and behind and inside my ears. I was biopsied and told I didn't have SLE, just the Discoid. 3 years ago I had a paralysis in both my arms that lasted 6 months, no blood test, but I was told it had nothing to do with Lupus and was referred to a Neurologist who said it could be an RSI or a Palsy. Recently I've had chronic chest pains that have lasted 6 months. I've had X-Ray and ECG and they both came back normal. The chest pains are starting to fade, but now I've had a really unusual manifestation,,, my testes feel like they are being squeezed constantly. It's a similar sensation to what I had in my chest and arms. Not really painful,, numb, tingly, pins & needles like, but mostly it feels like a long drawn out throb. Like putting pressure on a bruise. I've been taking 6 Ibuprofen a day for a while now, but I recently stopped as I've got swelling in my submandibular glands and a cold sore has turned up on my lip. Should I get back on the Ibuprofen? The testicular pain has lasted 3-4 days now. I'll give it another few of days and then get an appointment with my GP. I'd like to speak to a Rheumatologist, but I havent seen the same Doctor twice yet in all this time and each time I see one I just get told it's not Lupus and I've just to go buy some more Ibuprofen and deal with it. Sometimes my urine is really dark and foamy, I've tested it myself with strips I bought on the internet and the SG was 1.030 but it only read trace for Proteins. My stools are really heavy too, and they don't seem to flush away. Should I push the issue and try and get some tests done? Last time I went to my GP I asked for details from my biopsy that confirmed I had DLE. He said my files were in the basement and he'd dig them out and give me a call, but I haven't heard from him and that was a month ago.
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