Back on MMF 500 mg

After my 8th relapse of Wegeners, my Doctor put me on Ristova again for 6th time, 500 mg, four infusions. And with that he started MMF 500, initially twice daily. When from 1st Nov 2013 he started four daily, I was in terribly state. So he asked me to stop. Later from last five days he asked me to take twice daily and things are fine. But, though I am on Prednisolone 15 mg daily, I have lost appetite. But I eat, walk for 30 mins, do my Yoga and things seem to be fine. Sometimes memory is the problem. But I have put myself on alert and hope things will be fine. Anybody going through this? With warm regards

2 Replies

  • Hi. Could you or anyone else please explain what Wegeners is please.


  • Its a form of vasculitis. Another auto immune disease. There is a vasculitis community on HU.

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