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Hi everyone,

I am knew to this!

I haven't been diagnosed yet just going through the tests, it's been 10months now and all blood tests etc have pointed to SLE. I am just waiting on the rheumatologist who has a horrendous waiting time!

My symptoms started with what they thought was frozen shoulder 6months after the birth of my daughter 3yrs ago, this happened every six months then I got a steroid injection and it went for a bit! Then it came in both shoulder at the same time and I literally couldn't move so my doc did some tests and so the process began.

Since then my joint paint has went to my knees fingers and my toes are horrendous I literally can cry at the pain in my toes!

Now I don't know if this is lupus related but I feel my general health is a nightmare, my periods are irregular and some months non existent which is why I can't conceive a second child.

My skin is horrible very dull and spotty (used to be so healthy)

I have 'pee problems'

Feel EXHAUSTED literally exhausted most of the time.

I can get anxious and quite down which is just not me!

My eyesight is fine yet I sometimes see double and things can often be blurry and I literally can't walk out the door without sunglasses as even a slight bit of sun is sore to my eyes!

Now my symptoms come and go as does the joint pain and I can go for ages with no pain then bang it's back and worse.

Does this sound like anyone or am I going mad??


3 Replies

Yes, this sounds like lupus very much, I am afraid. Hopefully the visit at the rheumtologist should result in some medication that will stabilize your lupus. Lots of people find relief with eating healthy diet. All the best.


Thank you petrof I know in my heart it is just having that confirmation will make me feel more settled! Thanks again :)


At least you are over the first and highest hurdle - actually getting a diagnosis. Things will hopefully begin to move forward now with treatment for you . We are all here for you with any concerns and worries, you are by no means alone xxx


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