I am knew to this!
I haven't been diagnosed yet just going through the tests, it's been 10months now and all blood tests etc have pointed to SLE. I am just waiting on the rheumatologist who has a horrendous waiting time!
My symptoms started with what they thought was frozen shoulder 6months after the birth of my daughter 3yrs ago, this happened every six months then I got a steroid injection and it went for a bit! Then it came in both shoulder at the same time and I literally couldn't move so my doc did some tests and so the process began.
Since then my joint paint has went to my knees fingers and my toes are horrendous I literally can cry at the pain in my toes!
Now I don't know if this is lupus related but I feel my general health is a nightmare, my periods are irregular and some months non existent which is why I can't conceive a second child.
My skin is horrible very dull and spotty (used to be so healthy)
I have 'pee problems'
Feel EXHAUSTED literally exhausted most of the time.
I can get anxious and quite down which is just not me!
My eyesight is fine yet I sometimes see double and things can often be blurry and I literally can't walk out the door without sunglasses as even a slight bit of sun is sore to my eyes!
Now my symptoms come and go as does the joint pain and I can go for ages with no pain then bang it's back and worse.
Does this sound like anyone or am I going mad??