Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for March 2013

Newbie!

Hullo, I am new here after finally getting a diagnosis yesterday. Fourteen years of getting ignored / dismissed by doctors and a few misdiagnoses later,...

Hullo, I am new here after finally getting a diagnosis yesterday. Fourteen y...

chrissiij

•12 years ago

6 Replies

Apparently people with lupus dont need painkillers!!

Hi everyone I wrote yesterday about going to see a neurologist and thought I would let you know how I got on. First of all it was a major drama trying to...

Hi everyone I wrote yesterday about going to see a neurologist and thought I wo...

Dumpypug

•12 years ago

15 Replies

I've SLE Lupus and am medicated to the eyeballs since sept 2011, very aggressive still & flaring off & on. Alternative therapy ... any idea?

EllieB4

•12 years ago

9 Replies

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whats going on?

god knows whats happening i think my eyelashes are falling out they seem to be more than usual and i seem to be losing my memory a tad bit i do have APS but i...

god knows whats happening i think my eyelashes are falling out they seem to be m...

Danielle2419

•12 years ago

1 Reply

A ? About Tracheitis & pleurisy: am on antibiotics now

Got a bad chest/throat/head cold with typical symptoms inc terrible continuous coughing fits bringing up yellowish green clotted phlegm (sorry folks) 3 + weeks...

Got a bad chest/throat/head cold with typical symptoms inc terrible continuous c...

EOLHPC

•12 years ago

7 Replies

South Wales Lupus Group,coffee meet

We met in BBs to day at Cardiff, when we 1st done a coffee meet 2 people turned up But with our chairperson Rebecca Via Paul Lupus U/K facebook and myself...

We met in BBs to day at Cardiff, when we 1st done a coffee meet 2 people turned ...

janiceray

•12 years ago

5 Replies

Anyone in the Bracknell, ascot or surrounding areas interested in meeting up for coffee and a chat?

Hi I'm Jayne I've had lupus for about 18yrs I've got various health problems I've been on life support with heart attack,strokes, and kidney failure. I'm...

Hi I'm Jayne I've had lupus for about 18yrs I've got various health problems I'v...

Jayne54

•12 years ago

6 Replies

Neurologist

I'm seeing a neurologist today, am fully prepared to be fobbed off again. Last time I saw him he said the majority of my health problems are because I have...

I'm seeing a neurologist today, am fully prepared to be fobbed off again. Last ...

Dumpypug

•12 years ago

6 Replies

Should we take antibiotics for a virus?

I have had a cough / cold for 10 days, chest hurts so much from coughing if someone told me I had a broken rib I wouldn't be surprised! Went to the docs to get...

I have had a cough / cold for 10 days, chest hurts so much from coughing if some...

tiredmum

•12 years ago

7 Replies

Employers Refusal to Make Adjustments

Hello Everyone, After insisting I see the OHS "because they want to be supportive," my employers are now suggesting that it may be unlikely they will be able...

Hello Everyone, After insisting I see the OHS "because they want to be support...

Hidden

•12 years ago

7 Replies

lupus diagnosis

why in this day and age does it take so long to be diagnosed ?ive been to so many rheumys over the years and I'm still suffering and still being told no you...

why in this day and age does it take so long to be diagnosed ?ive been to so man...

katepscot

•12 years ago

10 Replies

lupus tests

I have had so many over the years some neg some positive this time ena positive ana negative and anti Ro positive Anyone know what this means

I have had so many over the years some neg some positive this time ena positive ...

katepscot

•12 years ago

2 Replies

Sheffield Lupus Group - our very first meeting :)

Hi all :) Well, the big day is almost here now! Sheffield Lupus Group will be holding it's very first meeting on Saturday 23 March at...

Hi all :) Well, the big day is almost here now! Sheffield Lupus Gr...

Silvermyst

•12 years ago

2 Replies

blurry eyes and achey eyes ,

hi all i have syjorns along with the rest of the autoimmune family, but suddenly after 2 years ive got really achey eyes, sometime they go blurry and no...

hi all i have syjorns along with the rest of the autoimmune family, but suddenly...

kittykat68

•12 years ago

8 Replies

Muscles

I feel like I've had a couple rounds with mike Tyson.don't have to move to feel pain either and my arms don't feel like they are part of my body.funny...

I feel like I've had a couple rounds with mike Tyson.don't have to move to feel ...

letslaugh63

•12 years ago

8 Replies

just wondering about mycophenolate mofetil

well, i was put on mmf about 9 months ago and due to apps being cancelled haven't seen a consultant since. since being on them i have lost over a stone in...

well, i was put on mmf about 9 months ago and due to apps being cancelled haven'...

tiredmum

•12 years ago

4 Replies

So long

Well hello again all. Haven't been on here for a few months. Just not felt up to it. Being feeling really down, stressed , depressed and in pain. I've just had...

Well hello again all. Haven't been on here for a few months. Just not felt up to...

Clairebear

•12 years ago

11 Replies

Hi how can i appeal my ESA?

Ive diagnosed 7 years ago never stopped working since last year October!! Unfurtunately my condition get worse felt tired depressed cant concentrate my work...

Ive diagnosed 7 years ago never stopped working since last year October!! Unfur...

Toya

•12 years ago

7 Replies

South Wales Lupus Group AGM

[Description] Yoga Talk & Demonstration: Kerry McGrath Raising Lupus Awareness with Photography: Patricia Ibanez Sale of Lupus...

[Description] Yoga Talk & Demonstration: Kerry McGrath Raising...

janiceray

•12 years ago

2 Replies

Emma 1, Lupus 0

Despite struggling with training and being ill the week before I managed to complete the Liverpool half marathon yesterday!!!!!! We raised nearly £350 for...

Despite struggling with training and being ill the week before I managed to comp...

Hhsegibs

•12 years ago

18 Replies

Update on partner+Esa

I haven't wrote for a while, just to say re my previous blog, Thank you to everyone for all your supportive comments Also to Paul. Who suggested I watched the...

I haven't wrote for a while, just to say re my previous blog, Thank you to every...

fj14

•12 years ago

5 Replies

Just life

My body isn't mine well. I wish it wasn't. The pain and the fatigue is getting me down I take dihydrocodeine for the pain as I was put on it 27 years ago for...

My body isn't mine well. I wish it wasn't. The pain and the fatigue is getting m...

lou1

•12 years ago

3 Replies

Infusion question

My rheumatologist said last week that if the methotrexate 20mg weekly, plaquinil 400mg daily and 60mg prednisone (taper attempt number 3 hopefully mid April )...

My rheumatologist said last week that if the methotrexate 20mg weekly, plaquinil...

Scoofiecoo

•12 years ago

2 Replies

just been diagnosed

I have SLE. i was only diagnosed about a month ago, I've been back to my gp a few times with some issues but they cant seem to answer my questions and just...

I have SLE. i was only diagnosed about a month ago, I've been back to my gp a fe...

LoopieMrC

•12 years ago

8 Replies

kidney transplant

Has any one had a kidney transplant due to having lupus like me. would like to hear how they feel after their transplant. how they are managing with life...

Has any one had a kidney transplant due to having lupus like me. would like to h...

sandwiches

•12 years ago

9 Replies

Anyone living in the London area? Meet up and get out :) The group is growing and we have had our first sucessful meeting!!! Repost!!

REPOST Hope everyone is keeping well. I wondered if anyone is interested in meeting in April, probably just to meet at a central London restaurant as...

REPOST Hope everyone is keeping well. I wondered if anyone is interested...

browneyedgal

•12 years ago

13 Replies

Wondering why I have lupus.

I had glandular fever almost exactly a year ago now, badly. I had raging temperatures, could barely function, extreme nausea, sickness and fatigue for over a...

I had glandular fever almost exactly a year ago now, badly. I had raging tempera...

Scoofiecoo

•12 years ago

14 Replies

Skin problems - can you help?

I woke yesterday to what I can only describe as a skin ulcer on my elbow, very sore, wheeping clear fluid and throbbing like mad, also the skin on my hand is...

I woke yesterday to what I can only describe as a skin ulcer on my elbow, very s...

beckybooboo

•12 years ago

5 Replies

South Wales Lupus Group

South Wales lupus group is having a coffee met at BBs in the St Davids Centre 11-1pm we will be up stairs and you will not miss us, so those who live near it...

South Wales lupus group is having a coffee met at BBs in the St Davids Centre 11...

janiceray

•12 years ago

5 Replies

lupus?

I was diagnosed with fibromyalgia in 2005 and tho things were pretty stable until sept 2011,i got pain and pressure in my ribs as well as protruding ribs on my...

I was diagnosed with fibromyalgia in 2005 and tho things were pretty stable unti...

anbuma

•12 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2013

Newbie!

Apparently people with lupus dont need painkillers!!

I've SLE Lupus and am medicated to the eyeballs since sept 2011, very aggressive still & flaring off & on. Alternative therapy ... any idea?

whats going on?

A ? About Tracheitis & pleurisy: am on antibiotics now

South Wales Lupus Group,coffee meet

Anyone in the Bracknell, ascot or surrounding areas interested in meeting up for coffee and a chat?

Neurologist

Should we take antibiotics for a virus?

Employers Refusal to Make Adjustments

lupus diagnosis

lupus tests

Sheffield Lupus Group - our very first meeting :)

blurry eyes and achey eyes ,

Muscles

just wondering about mycophenolate mofetil

So long

Hi how can i appeal my ESA?

South Wales Lupus Group AGM

Emma 1, Lupus 0

Update on partner+Esa

Just life

Infusion question

just been diagnosed

kidney transplant

Anyone living in the London area? Meet up and get out :) The group is growing and we have had our first sucessful meeting!!! Repost!!

Wondering why I have lupus.

Skin problems - can you help?

South Wales Lupus Group

lupus?

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